Just met with MO: My husband is six... - Advanced Prostate...

Advanced Prostate Cancer

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Just met with MO

Kimmilemo
Kimmilemo

My husband is six weeks out from his SR...

First Dx 2008, 30 radiation treatments with calypso with two years of lupron every six months

Recurrence spring 2018 Gleason 8 PSA just under 4 Did SR six weeks ago, new psa today 0.2 Not what we were hoping for. Going to test again in 6 weeks.

If it goes lower they will wait till it rises to start hormone treatment if it doesn’t lower still may wait.

The surgeon said cancer was positive in margines but had a lot of cancer in the prostate so getting it out was good. Due to the large amount of radiation he had done first dx he is having a hard recovery from surgery , sitting etc.. they sent him down for a CT scan to see if they missed anything from surgery.

Kinda discouraged was hoping we would be a Luckey one with the cute they talked about with surgery. Wasn’t in lymphoids or no shown bone Mets at this time,.

Is this the best protocol that his MO has laid out?

Concerned wife

Kim

5 Replies

Just my opinion, but when PSA doesn't drop to almost zero after prostate removed, ADT drugs are indicated. My PSA actually went up 10 pts. in first 5 weeks after removal, but had all positive margins and spider web of neural and veinous Gleason 9 every where out of prostate area. I had to hit it hard or die.

Kimmilemo
Kimmilemo in reply to Shooter1

They said the same for my husband margins positive , and in the semi vascular , some cores were 9 but gleason score 8, it was agressive last time to but radation and lupron gave him 10 years, they said he cant do radiation anymore. Shooter1 what was your treatment ?

Kim

Shooter1
Shooter1 in reply to Kimmilemo

Lupron until orchiectomy, chemo(taxotere) 9 rounds, added xtandi after#5 when PSA started to rise. Finished chemo. xtandi was killing me. whole body deteriorating dtill I was an invalid sitting cold in my chair with blanket and unable to get up without help, 24/7 pain moderate I could handle to sever which crippled me. Eyesight very poor, no strength(couldn't lift 2#) + other problems. Cut dosage and improved starting in 3 days. Still on reduced dose. Able to return to work after 45 days. PSA steady at 0.140 area now.

Kimmilemo
Kimmilemo in reply to Shooter1

I’m glad you got it all turned around now. When I asked our MO about chemo he said No. Your PC never had mets has it ?

Shooter1
Shooter1 in reply to Kimmilemo

yes, Between clear scans before RP surgery and 2 1/2 month later, showed 3 bone mets. in pelvis and sacrum and 2 in lymph nodes. Last scans 6mo. after end of chemo showed no soft tissue mets and only two bone mets with very minimal up take of scan radio isotopes. Chemo and xtandi nailed cancer but was a nasty 18 mo, battle.

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