John205 : I have a recent diagnosis of... - Advanced Prostate...

Advanced Prostate Cancer

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John205

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I have a recent diagnosis of very advanced prostate cancer, Gleason 8, with pelvic lymph nodes and multiple bone mets including pelvis, vertebrae, femur and ribs. Had first dose of Lupron and PSA went from 148 to 16 within 2 weeks. Anticipating local palliative radiation to neck, and either docetaxel or abiraterone. Seen at University of Pennsylvania and 2nd opinion at Memorial Sloan Kettering. May also go to Hopkins or Dana-Farber. Any recommendations on who to see at those centers?

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john205
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YostConner profile image
YostConner

I see Michael Carducci at Hopkins. Been with him for 11 years.

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john205 in reply to YostConner

Thanks for the recommendation.

snoraste profile image
snoraste

At memorial ask for dr. Scher’s team. He rarely sees patients now, but his team is cutting edge and aggressive. He’s the one who’s been doing a lot of multimodal therapies there with some success.

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john205 in reply to snoraste

That's helpful. I'll look that on their website.

Nicnatno profile image
Nicnatno

John, since you were at Penn, why not try M.D. Anderson in Camden, NJ? I am well taken care of by my Onc who specializes in PCa. At the present, my quality of life is very good.

Nick

Lombardi24 profile image
Lombardi24

At Dana Farber - Dr. Mark Pomerantz. At Sloan Dr. Karen Autio.

pakb profile image
pakb

We see Geynisman at FoxChase in Philadelphia and love our team. My husband has very similar diagnosis to yours. You can see details in my profile. I do need to update. We went to Penn, Jeff, and Foxchase when we were first looking. All gave us the exact same treatment plan and advice. They also all talk. Planning a trip to MSK this year just to see if theyd say anything different.

PCa2015 profile image
PCa2015

At Johns Hopkins, Dr Emmanuel Antonerakis. Involved in clinical trials, has published many research papers, and wonderful bedside manner.

hopkinsmedicine.org/profile...

j-o-h-n profile image
j-o-h-n

Well to one john from another j-o-h-n, you've apparently been to MSKCC but if you haven't been to the Main location at 68th street near First Avenue, then I would recommend my Oncologist there: Dr. Michael Morris. You can view a couple of dated youtubes from MSKCC sort of featuring Dr. Morris (great guy btw).

Good Luck and Good Health.

j-o-h-n Monday 08/13/2018 4:55 PM EDT