We/Malecare are in a position to help... - Advanced Prostate...

Advanced Prostate Cancer

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We/Malecare are in a position to help ourselves and others

dorke profile image
12 Replies

There are currently about 4000 members on this forum, unfortunately not all of them active.Its about the size of a large clinical trial !

Everyone of us has a story: When we where diagnosed ,at what age ,PSA,PSADT, ,Gleason,stage,treatments,supplements taken,lifestyle etc.

If instead of everyone giving this information in an anecdotal way, we could fill in some structured data, we will (with the help of a data analyst) be able to extract valuable info.I even believe it may benefit the medical institution.

Maybe Malecare are already working on something like that - would like to know if its indeed the case.

Thoughts ? Would you be willing to collaborate?

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dorke profile image
dorke
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12 Replies
Blair77 profile image
Blair77

We would!

Rogersw profile image
Rogersw in reply to Blair77

Sure

Darryl profile image
DarrylPartner

Re “active members “. Actually the overwhelming majority regularly log on and spend a lot of time reading.

For example, in May ( I haven’t crunched June yet), there were 54,453 visits accounting for 174,235 post views. Our community is very active. Most here log on one or more times per day

hansjd profile image
hansjd

Sounds like a great idea!

Hohman profile image
Hohman

Great idea....yes

j-o-h-n profile image
j-o-h-n

I second the motion. However we must make sure that there's no GIGO.

Good Luck and Good Health.

j-o-h-n Sunday 07/15/2018 1:51 PM EDT

dorke profile image
dorke in reply to j-o-h-n

definetly an issue that needs to be dealt with.

If it will work in such a way that only registered malecare users can enter data, I wonder how much garbage could be generated

Darryl profile image
DarrylPartner in reply to dorke

@dorke Did you really mean to say that Malecare users would generate garbage?????

dorke profile image
dorke in reply to Darryl

Darryl, on the contrary.My intention was to say that since it would be based on Malecare users, the chance of garbage is very low.

BTW ,garbage doesnt mean that someone deliberately enters bad data.

Is more to say erroneous data

Darryl profile image
DarrylPartner

I understand. It’s just that your post wasn’t clear. Would you like to discuss your suggestion by phone?

dorke profile image
dorke in reply to Darryl

Let me prepare a draft and then we can discuss it.Can we do it over Skype ?

Darryl profile image
DarrylPartner in reply to dorke

Sure.

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