Physical Therapy for Incontinance aft... - Advanced Prostate...

Advanced Prostate Cancer

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Physical Therapy for Incontinance after Surgery

EricE profile image
8 Replies

So I won the lottery last September when they found PC in most of my P and a lot of my seminal vesical as well. This eventually led to my choosing to have a radical robotic prostatectomy with non-nerve sparing. The surgery went fine but when the pulled the catheter out after surgery I found (Like most men) that I was incontinent. This is disturbing (I say in that it was horrifying). I knew it was likely and it was still horrifying. Perhaps there are those out there contemplating the same surgery and I have a recommendation.

Before you have surgery, have the surgeon refer you to a good physical therapist experienced in treating incontinence. It's not enough just to "do your kegels". Get a PT to teach you how to do the exercises right. It requires coaching.

I did not do this but I started PT about 6 weeks after surgery and after a few weeks I went from wearing several full diapers a day with maybe 7 or 8 pads to cutting that well in half. It has made a huge difference.

The surgeon is unlikely to recommend PT. You'll have to ask for it. But it helped me immensely and I am going to keep at it.

Good luck brothers and sisters

Eric

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EricE
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greatjohn profile image
greatjohn

Good luck in the future...great advice!

Shooter1 profile image
Shooter1

I was lucky with the incontinence. Foley pulled and one week with diapers, moved to pads and by 6 weeks shields that only needed to catch a drip or two if I strained or forgot Kegels before standing. Blessed that was all I needed.

Doug-AZ

MichaelDD profile image
MichaelDD

Eric... SO TRUE. My other half is an OR nurse and she preached it to me from the time I left the Urologist's office. I also had robotic RP June 2016 Gleason 8 with invasion. For me this is a BIG part of pre-surgery and should be asked prior (over and over) if its being done. When they pulled my catheter not a drop after. I did 39 sessions of radiation 3 months later and my Radiologist was thrilled with this. I take a diuretic for blood pressure at night - since I was 18 and I'm 64 now. I sleep 8 hours with not getting up. Now if I flood my body with liquid then I NEED to go. That urgency there is different. Leakage never had it , pads never had them. A side note is they are a great sexual help too (( learning to control that muscle stops orgasm ejaculation)). I came back from surgery and within 2 months also could get a semi hard - erection. Also had "arousal feeling" down there. My partner was very helpful and understanding. I wasn't "full" but definitely a solid half plus even now. She with gentleness could get me to hard and dry orgasm. Viagra pushed it to full. I still do Kegel. Next step for me is HT/chemo. I know things will change then.

Good luck to you on your journey... Michael

EricE profile image
EricE in reply toMichaelDD

And to you Michael. Thank you. Keep us posted on your health.

Zytigadude profile image
Zytigadude

I was fortunate when it came to the incontinence. I had non robotic RP and was dry after they removed the foley after 10 days. I just finished 40 treatments of radiation and I am still dry, but I have urgency and wake 4-5 times nightly to urinate. Before radiation I could sleep all night without getting up. This getting up 4-5 times per night is really taxing on my sleep. My RO said this will get better within the next 3-6 months. I sure hope so as I do like sleep. LOL

Balsam01 profile image
Balsam01

I second this excellent advice. A friend of mine recommended a pelvic focused clinic and I feel it made a difference. I really had to work at it. Now I go to the gym and do the exercises based on what the therapist taught me.

MrsEricE profile image
MrsEricE

Don't forget to ask for a physical therapist who specializes in treating incontinence. All physical therapists are good generalists but there is only a handful who go on further to develop specialties in something like incontinence. I am a physical therapist and specialize in treating lymphedema and spinal alignment to manage pain. Trust me, when I say, not all physician therapists are the same. I treat pelvic floor incontinence but I am not a specialist and am thrilled that EricE has found a really good one. And that he is compliant with doing his exercises. There are many more beyond Kegels. Good luck!

j-o-h-n profile image
j-o-h-n

I tie mine in a knot....

Good Luck and Good Health.

j-o-h-n Monday 06/25/2018 2:02 PM ED

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