My history is in the profile. After 20 years since my diagnosis, I have learned that my cancer, now in the pleura around my left lung has mutated to a neuroendocrine or small cell cancer. This explains why I failed to get benefit from Provenge or Enzalutamide. The rapid change occurred since August when a PET scan showed the growth of tumors in my mediastinum and left pleural space.
They have now become very aggressive and are producing fluid rapidly. I have had 3 liters removed and there is more left.
Met with my oncologist yesterday. We will start a series of infusions of Carboplatin and etoposide every 3 weeks to see if this will slow the process. I will also get an indwelling catheter to remove the pleural effusions so I can breathe.
It has been hard to accept both for me and for my family since I am feeling so good and remain very active. But, alas, the cancer has the upper hand for now so we will give this a shot and keep an eye on my quality of life. My physician daughter was able to join my wife and I for the conversation and it was enormously helpful.
Awaiting results of tissue sent to Foundation One at Harvard for genetic testing but not much hope for a directed treatment.
I am so grateful for comprehensive coverage at Kaiser and a warm, wonderful compassionate oncologist who can even shed a tear with a stressed family. It is a new day and a new chapter in my book of life.