My response to Actinium-225 Rosopatam... - Advanced Prostate...

Advanced Prostate Cancer

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My response to Actinium-225 Rosopatamab trial

GSDF profile image
GSDF
15 Replies

I began this trial with first infusion on January 9th, second infusion January 23rd. I was told of the likely side effects of salivatory gland damage, lack of appetite and heavy fatigue.

My actual side effects were very heavy fatigue, altered sense of taste and diminished appetite, all of which are fading. I had/have no salivatory production issues whatsoever.

Prior to trial I was in significant bone pain requiring narcotic pain medication. All pain stopped 2 weeks after 2nd and final infusion. Last week's scans show no progression of disease. PSA has been reduced >50% with yesterday's PSA showing another reduction.

I've been deemed a positive responder and now have just follow-ups for scans and labs scheduled for April, May and then every 12 weeks thereafter until (if ever) progression. I am grateful.

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GSDF profile image
GSDF
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15 Replies
Orange95 profile image
Orange95

Great results! Congrats!

KocoPr profile image
KocoPr

excellent results. Keep vigilant and keep an eye on new trials. Follow Max on Fight Prostate Cancer group.

Curious in your bio i see no genetic testing. Gaurdant360 is covered by Medicare

CAMPSOUPS profile image
CAMPSOUPS

Thats fantastic.

I've read but not sure, Ra223 has less effect on salivary glands than Pluvicto.

Enough of that talk lol. Time for a celebration!

Great news brother!

❤️❤️❤️

pjd55d profile image
pjd55d

good for you

I always like to hear good news - for anybody, anywhere

PSAed profile image
PSAed

Great results! A win for you is a win for all of us. Thanks.

GP24 profile image
GP24

Great result! I consider the salivatory gland damage as the worst side effect. Do not ask for more cycles.

leo2634 profile image
leo2634

Great results and congrats 👏 thanks for taking one for the team with the trials. Never give up never surrender Leo

PTvsPC profile image
PTvsPC

Congratulations!!! Keep up the good fight!

j-o-h-n profile image
j-o-h-n

God Sends Definite Faithfulness.

Good Luck, Good Health and Good Humor.

j-o-h-n

Slick714 profile image
Slick714

Always love seeing good news on the forum!

CousinGrandpa profile image
CousinGrandpa

so pleased for your encouraging report. Keep up the good work!

Doggedness profile image
Doggedness

Thank you for sharing. That is so encouraging (& congratulations - such great news).

MateoBeach profile image
MateoBeach

Very happy to hear of your response. Actinium-225 Rosopatamab is notably the SAME monoclonal antibody ligand also known as J591 and more recently TLX591 (Rebranding). I had Lu177-J591 3 years ago and have undetectable PSA since then. If I were to have further progression, Actinium-225 Rosopatamab would be my choice for next tier of treatment. Paul/MB

Rickmartin1948 profile image
Rickmartin1948

Great news my firend. Keep it up!!😀

dockam profile image
dockam

YASS, always love to hear of great outcomes

youtu.be/3GwjfUFyY6M?si=wEJ...

QoL on

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