I began this trial with first infusion on January 9th, second infusion January 23rd. I was told of the likely side effects of salivatory gland damage, lack of appetite and heavy fatigue.
My actual side effects were very heavy fatigue, altered sense of taste and diminished appetite, all of which are fading. I had/have no salivatory production issues whatsoever.
Prior to trial I was in significant bone pain requiring narcotic pain medication. All pain stopped 2 weeks after 2nd and final infusion. Last week's scans show no progression of disease. PSA has been reduced >50% with yesterday's PSA showing another reduction.
I've been deemed a positive responder and now have just follow-ups for scans and labs scheduled for April, May and then every 12 weeks thereafter until (if ever) progression. I am grateful.