Doc recommends Xtandi but prescriptio... - Advanced Prostate...

Advanced Prostate Cancer

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Doc recommends Xtandi but prescription insurance is cost prohibitive.

Tomasoz profile image
22 Replies

I was diangnosed with Prostate cancer in 2009 and did nothing until I noticed changes in my urinary routine and some discomfort when I pushed on my Ischum tailbone.

Treated with just Casedex for 6 months till PSA started rising, than for the last 4 months have been receiving Deralix injections monthly. Last month PSA rose from 6 to 8 and Oncologist recommended Xtandi. I am retired on Medicare A and B plus have AETNA prescription service. My cost for a month's supply of Xtangi will be $2,200. Quite a bit for someone on a fixed income. Any thoughts.

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Tomasoz
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22 Replies
BigRich profile image
BigRich

1-855-898-2634 It is the # for Xtandi cost support.

Rich

Tomasoz profile image
Tomasoz in reply to BigRich

Thanks big rich They were extremely helpful and it’s very promising that they will pick up the co-pay thanks 1 million

Beermaker profile image
Beermaker in reply to BigRich

My Xtandi comes from CVS Speciaty Meds. My Uro submitted paperwork for a PAP (Patient Assistance Program?) and I now have $0 co-pay. Perhaps a life saver for me. Another delivery to my doorstep today!

BigRich profile image
BigRich in reply to Beermaker

Did the doctor submit paperwork to the company that makes Xtandi or directly to CVS Specialty Pharmacy?

Rich

Beermaker profile image
Beermaker in reply to BigRich

They send it to CVS Specialty. 1-800-238-7828. Good luck

BigRich profile image
BigRich in reply to Beermaker

Does that mean you had insurance that covered everything except the co pay.That the paperwork was for only the co pay?

Rich

Beermaker profile image
Beermaker in reply to BigRich

I checked my latest insurance statement, and there was nothing there about Xtandi, so I have to assume that CVS Specialty and the company behind Xtandi, Astellas. covered it all. The clinic I go to has a person who handles all of the paper work so basically I never see it. I did get a letter from Astellas saying I needed to have Part D coverage, but the Astellas program was outside of it. That's all I know. Your Doctor has to initiate the request I think. Good luck!

BigRich profile image
BigRich in reply to Beermaker

Thank you.

Rich

Tomasoz profile image
Tomasoz in reply to Beermaker

Thx Beermaker. I was able to get the co pay down to 0 most likely through the same assist program however it will only cover a few months worth and than I will need to fill out a company form to see if I qualify for company assistance

Tomasoz profile image
Tomasoz

Thanks big rich They were extremely helpful and it’s very promising that they will pick up the co-pay thanks 1 million

BigRich profile image
BigRich in reply to Tomasoz

I am glad I was able to help you.

Rich

Dr_WHO profile image
Dr_WHO

Wish there was an answer. Caremark, that covers my drugs, took it off the list of things they will pay for. Open market cost is over $12,000/month.

Tomasoz profile image
Tomasoz in reply to Dr_WHO

My co-pay would have been $2500 a month but was able to get some assistance when I called the company’s customer care phone number that Rich’ said I should do

larry_dammit profile image
larry_dammit

Tom. Xtandi is supposed to have a assist program. I did not qualify but you can call them to see if you qualify for the discounted program

Tomasoz profile image
Tomasoz in reply to larry_dammit

Thanks for the info I’m all set I did call that number and I was able to obtain some assistance to cover costs good luck with what you’re dealing with

motosue profile image
motosue in reply to larry_dammit

I am assuming that you have more than their acceptable amount of income to qualify.

Check out report on YouTube: ABC15 Canadian Med Store for lower prices. There are many scams, this is not one of them.

Tomasoz , That is criminal. Appalling BS. I hope you find help $. I’m also on Medicare .It is of imterest to me to hear your outcome. I could well be in the same cituation in the future. Let us know and good luck.

Tomasoz profile image
Tomasoz in reply to

I1-855-898-2634 It is the # for Xtandi cost support. It worked for me.

hysir profile image
hysir

My most expensive drug is zytiga. Looking over costs for 2017, initial cost was $2900.00. That amount put me in the catastrophic coverage which made by monthly cost for the rest of the year at approx, $450 per month. My drug provider is Express Scripts.

Tomasoz profile image
Tomasoz

I had the choice between staring on Xlandi or Zytiga. Is the drug working for you?

hysir profile image
hysir in reply to Tomasoz

Zytiga is working for me. I get lupron shots every 3 months.

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