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[garythomas]

Aug 13, PSA of 6.9, up from 2.1 eighteen months ago. Unmistakable lump felt on DRE.

Dec 13, PSA of 19, Gleason 4+5=9, stage 4 & met at L5. Started 3 mthly Lucrin injections.

Early 2014, 37 fractions of EBRT to prostate & 20 to L5.

6 cycles of Docetaxel in Dec 2016.

PSA nadir <0.02.

PSA slowly rising for about a year up to 0.92.

Bone scan & CAT scan showed no new lesions & existing ones stable.

PSA 1.21

F18 PSMA PET scan showed one pelvic lymph node near rectum and sacrum.

5 stereotactic radiation fractions to node.

PSA 1.07

[Cmdrdata]

Gary, I just joined this group and read your most recent post. Glad your PSA is at the current level. I’ve been fighting this beast since 2006, and seemed strange that with my PSA going up and down I still feel normal physically. So with God’s blessing and comfort, enjoy life, family and do your bucket lists while you are still able.

[garythomas in reply to Cmdrdata]

Thanks Cmdr, will do. Will you be moving on to Abiraterone ?

[paulofaus]

Hey Gary,

Because I've known you for a couple of years now it's kind of weird to see your 'intro' post.

Like many of us here, you've had some punishing treatments, but you've done extremely well. Managing to keep your PSA so low for so long, you're definitely doing something right.

I hope it continues.

Cheers

Paul.

[garythomas in reply to paulofaus]

Hi Paul,

Thanks. Fingers crossed, I see Siobhan (Medonc} on the 21st.

Regards,

Gary

[paulofaus in reply to garythomas]

I'll have all fingers and toes crossed Gary.

[iLoveDad]

Glad to hear that your PSA level is going down. My dad is similar to your case, I am praying hard for him, hes on a day 2 after Lucrin!

[garythomas in reply to iLoveDad]

Hi,

PSA has crept up to 0.09 but med onc says it is still low. It has worked well for me. The usual side effects such as hot flashes and weight gain but quality of life is good, so definitely worth it.

Regards,

Gary

[iLoveDad in reply to garythomas]

I need to learn and find out more about coping with hot flashes!

[garythomas in reply to iLoveDad]

I am on an anti depressant called Efexor (Venlafaxine) and an anti androgen called Androcur (Cyproterone Acetate), which are supposed to help with the flashes