Advanced Prostate Cancer
4,531 members4,375 posts

Being real

I got reminded on this post about useing, inappropriate language. I only used it cause I was being honest about my feelings if one can't be honest on on here then it isn't worth it. Heck we all got 1 thing in common cancer. It's not a great feeling being told you have cancer. When you deal with it your attitude about life kinda changes. And i dont need someone lieing about things i need to hear it like it is. Not something nice but the truth. Heck we faced a certain death. Now I'm cancer free because of surgery. But as a man with a penis I'm finished sexually I can't get hard let alone penetrate anyone. But it's cool at least I'm alive. But I don't need to hear something sugar coated. I need to hear it like it is. So i guess i wont be in this room anymore. We need to be real about this. Not talk about something someone wants to hear. The true feelings say it the best.

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Our community accepts all expressions of feelings related to prostate cancer except please don’t use the obvious curse words that cause some here discomfort. Please remember there are over 2800 people here from all backgrounds etc. we can be Very real (eg regarding sex, hardons, cum, etc) and at the same time respectful and helpful.

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Have you tried Muse or Trimix for erections? The feeling is different, but they may help.

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Excuse me for being nieve, but I have never heard of these, are they meds and do you need to get them from a doctor? Help me out with these please

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See also:

pcf.org/c/erectile-dysfunct...

pcri.org/azure-1/2017/9/18/...

ustoo.org/PDFs/Injection.pdf

And then talk to your doctor.

If you can get to a face-to-face Prostate Cancer Support Group meeting and find men who may already have personal experience with using these drugs and techniques, that will be helpful, too.

If in the USA, here's one place to search; there are comparable sites elsewhere and in different countries.

ustoo.org/Support-Group-Nea...

Charles

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Just to close the circle, Muse is a soft pellet the you insert in the urethra. Trimix is on of the injections that Charles’s materials discuss. As Charles said, read his links, then talk with your urologist.

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David,

We all "go off at times" . The group admin has silenced me in the past for being a jerk. I deserved it. This site is full of men and women who 'have been there, done that". I have learned to swallow my pride in order to get along with others here. Maybe my anger stemmed from my former profession. Hell i don't know. stick around, read, research and learn. Maybe trying being a tad more laid back when it comes to swearing like a drunken sailer, give it a try. Please.

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Ha ha, thanks I just didn't see the harm I was just expressing my true feelings soul I said wad I don't give a, and then I used the f word bit it's the way I see things now after the cancer diagnoses. Even though with the robotic surgery and removal of prostate. Surgery I'm cancer free for now. who knows what's in store for the future.

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I know how you feel, i went from being a "superman" to a human. It sucks.

Bottom line, the group needs you, I'm sure you have a lot to give back. Hang out, chill, work on the f bomb you have been using all your life, it's rough as fu%k to do, give it a go.

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Ok thanks, you talked me back in.

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I agree , freedom of speach.. Ididnt see what you said. Just as long as you are not criticizing or personally attacking others or their views. We should all be tolerant of each other’s views. We seek knowledge in how to live with APC and keep love of life alive in our hearts.. We can all learn a lot here from each other. like that sage poet Rodney King said during the. L A riots” can’t we all just get along”?

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I was active in the Free Speech Movement at the University of California, Berkeley, back in the '60s. After that, there was something called the Filthy Speech Movement. I didn't participate. Although there are no "bad" words as far as I'm concerned, I understand that both legally & as a matter of respect for others & for the rules of a group like hours, speech may be curtailed on the basis of time, place & manner.

I also didn't see what David said, but I can get the idea from these posts. I agree with you, Lulu, that we should be tolerant of one another. That doesn't mean we can't disagree, it just means we should do so respectfully & without rancor--or language that offends some members of our very large & diverse group, as Darryl points out.

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Well I'm not Rodney I say it like it is always have and always will

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Hey David October 1956,

As Rhett Butler said In Gone With The Wind "Frankly, my dear, I don't give a shit."

Good Luck and Good Health.

j-o-h-n Thursday 01/25/2018 1:08 PM EST

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Ha ha ha wasn't that dam?

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OH sorry.

""Frankly, my dear, I don't give a dam shit."

Good Luck and Good Health.

j-o-h-n Thursday 01/25/2018 6:41 PM EST

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Ha ha ha good day to you too sir

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Hi David from a very wet and flooded UK. I appreciate your opinions however I’m not from the same mindset. I like sugar coating and positive support it doesn’t make me wrong just different. I heard my oncologist loud and clear with his stats and listened while my life was changed forever. I accept all the changes bodily (get frustrated and angry sometimes tho) but I choose to have hope each and everyday. I’m a father to 4 young boys and I have to walk forward every day it’s my duty to them. Whatever comes my way I will be ready but I will always choose to read the positive helpful posts as they charge my fight against this. I unfortunately can’t be cured and I know what lies ahead but do I choose to dwell, no I can’t weigh myself down with that. I however understand we are all angry at some point and it is our duty to stand together and not ostracise anyone for their individual feelings whether we agree with them or not. 👍

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That's why there's chocolate, strawberry and vanilla, not everyone likes the same thing. To each his own.

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Hope is all any of us have. I think often when a person is told they have 1 year to live, they may just believe that, and promptly obey. I think positivity feeds back on the immune system. For me 12 years ago when they told me I had a year, I said thank you very much, but I will live much longer than that, to which he replied,” It is nice you are positive , but most people do not.” First you need a reason, desire , and purpose to live, You have all of those. Hope springs eternal.

Dan

Ps , so called sugarcoating may come from perspective, If a guy has an undetectable psa , he may see a Man with a psa of 5 as in dire straights,and surely headed for MCRPC On the other hand if the man has survived for years with multiple bone mets and never had an undetectable psa, a man stable at 6 psa seems pretty good.

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I agree. 👍

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