Advanced Prostate Cancer
4,531 members4,372 posts

Lupron Holiday continued

Well it has been 6 months since my last Lupron injection. Follow up blood draw still at <.01 so all is good. Likely I still have no return of testosterone or they just have not awakened yet. Still getting a few but far less frequent hot flashes and still no improvement of any of the other miserable side effects. Not sure how long it will take for T to come back, if it can. Still glad to be taking a break and only time will tell how long this will last.

19 Replies
oldestnewest

Good stuff!

1 like
Reply

My husband had real live orgasms after 6 months on holiday his holidays have lasted around 9 months before PSA crept up. But he can’t wait for his third holiday (neither can I). Good luck.

4 likes
Reply

Please keep us posted. I am just 2 months out so I doubt I'll feel too much different for awhile. While I would like the hot flashes to stop, I am in NO hurry for my libido to return. All that tension and distraction I can do without.

Good luck!

Bill

6 likes
Reply

Shealy, yep not likin* the side effects from the lupron , have lost all my manhood, but doctor says that is what is keeping my PSA down so I guess I’ll have to live with it. Not sure if it’s the lupron or the Xtandi but the mornings are tough. My fingers lock up and are painful. Cold water and movement. Hang in there.

3 likes
Reply

Suggestions for the fingers:

1. Alternate hot and cold water - more effective for me than just one or the other.

2. Exercise - open and close hands forcefully, hundreds of times per day.

3. Sleep with balled up fists. It takes practice, but the fingers aren't as stiff in the mornings.

2 likes
Reply

Looking forward to vacation from Lupron with your results! I'm still 1 1/2 years from Lupron break. My worst side effect is big-time fatigue. Pee pain, minor hot flashes, low T, and lack of sexuality are others. Had rectum and urinary tract radiated along with Prostate which causes the pain I'm sure. Am looking forward to regaining some T later, but happy to be alive. Still can walk 2 miles in 40 mins and do 20 to 30 mins of general exercise at LA Fitness 4 or 5 times a week, but this is nothing near what I was doing before Lupron and can easily lay in bed 10 hours a day which is a real bummer. PSA of .01 keeps me positive.

6 likes
Reply

Sounds to me like you're doing really well with your exercise. Keep up the good work and best of luck.

3 likes
Reply

Sounds like everyone has different issues with lupron, I can be pretty active but pay for it the next day. Good nap still feels good .

2 likes
Reply

Thanks!

Reply

Thanks!

Reply

Stay the course! Reach for that goal.

1 like
Reply

I'm in my 7th year of Lupron (Eligard). My PSA has been 0.00 all this time, but I am also using Lupron to reduce tumors from forming in my body. Some of my PCa single cells still leave my prostate and go to other places in my body including my bones. Without Testosterone (Androgens) in my blood stream, these single cells can not multiply, because of the androgen receptor (AR) on each cell must be present for the PCa cell to multiply and form tumors. I have very little side effects from Lupron now. I wish you well and I do not know how long you have been on Lupron injections. We each can make our own decisions and stay healthy. Thanks for your input!

5 likes
Reply

I have been on Lupron for 2 1/2 years. Unfortunately it was deteriorating my bone mass quickly and the doctor felt it better to take a holiday. A broken hip would be more hazardous then the PCA. I have no idea how long this holiday will last but it is quite liberating to not have the 3 month injection.

3 likes
Reply

Shealy were you on any other type of meds .

1 like
Reply

larry_dammit,

No other meds just taking calcium and vitamin D. I refused Docetaxel in combo with the Lurpron and will never want to go that route.

Reply

Jim. Are you on monthly injections or every 3 months . I get a monthly with a Xgeva shot as well with a full blood panel and PSA. Current .005

Reply

Hello Larry, I have a three month injection of Lupron, and in my fourth year I had low bone density and every 6 months I received Xgeva injections for 4 injections total. Every time I get my Lupron injection I have a complete CBC (complete blood count) along with minerals (about 25 tests). My oncologist does this when I arrive and has the results when I see him (about 20 minutes). Like I said my PSA has been 0.00 for 6 years now! I am very lucky, and I wish you the same! Do you understand how Lupron works? If not let me know. Keep truckin'.

1 like
Reply

So far no reaction to Lupron except my dick fell off....

Good Luck and Good Health.

j-o-h-n Wednesday 01/24/2018 6:06 PM EST

5 likes
Reply

Lupuon sucks....18mos into a life sentence...ductal variant so mo says no breaks....still able to work but only 8 hrs...can play golf but suffer after 16 holes ...no more xtra?holes.

If anyone says they have little side effects...i would question ..those that get a break cheers....the "new me""...as doc told me to get used too..is 1/4 the man he was...the worst is loss of hard on...sure theres other ways and im cool with all that ....but nothing says youre well like a boner you could hang a gate on.....i digress...and did i mention memory.....i forget.....love first day of 3mo. Shot...wires u up like cheap speed....quality of life who needs it....stay alive keep evryone else happy...good luck with brreak....hope you regain some sense of your old self....peace...

Reply

You may also like...