Advanced Prostate Cancer

Recently Diagnosed

Hello All ,

I am recently diagnosed with Prostrate cancer Stage 2, Doctors have said its curable but I am not sure, I am new to this and I am hoping I can be alive for my darling wife and kid. Doctors have asked me to on Medication and also have recommended for injections as well once a quarter to start with. Based on the diagnosis they have mentioned it has not spread into other areas . I went on for a second opinion and they mentioned about possible options of Chemo also . What values of PSA is really serious ? Any help on this is appreciated .

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37 Years old , Male , What is the acceptable value for PSA & Gleason Score ?

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Welcome to the group that no one wants to be in. But you will never find a better group of men and women. It is hard when they tell you that you have cancer. But if you are Stage two that is great news! It means that the cancer is confined in the prostate. It means that YOU CAN BE TOTALY CURED. You asked about PSA levels, that is not really that important as there are men here that have advanced cancer with a PSA less than three. Mine was 4.7 when they found out I had Stage four. What is more important is your Gleason score. Can you share that?

There are two sights that have wonderful booklets dealing with prostate cancer. The first one is fro the Prostate Cancer Foundation. They can be found at

PCF.org

The second one is from the American Cancer Society. Their link is

cancer.org/cancer/prostate-...

To better help you could you please give us as much information as possible? For an example, click on my header.

No two ways about it, cancer sucks. But you are now with brothers and sisters that care for you. You will never be alone again! We are here not only for information but to a shoulder to share your fears. Remember “people like us we have to stick together “!

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My G. Score is 2.9

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It looks like that was your PSA score. Your Gleason score should be a whole number. Gleason scores below 7 mean that the Cancer is not that developed and you can be totally cured. Eight or higher is indication of advanced cancer. Again if the doctor stated you were a Stage two it is still early stage cancer. You can be cured!

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I am sorry , Score is 5.2

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Sorry to say this but Gleason scores have to be whole numbers. It is actually made up of the state of the two largest cancers on a slide. Mine was G4+4=8, or advanced cancer. If your Gleason score was a 5, and let’s hope that it is, then that is very good news for you. It would mean that active surveillance would be a legitimate treatment. Some doctors would not even call it cancer unless your Gleason score is 6 (3+3).

Your Gleason score is important information, even if you do not share it with us. Please ask your urologist to send you your biopsy report or ask him what your Gleason score is.

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Team , I was recommended Chemo and I took it . It was a tough one , But I had support , what I have felt is I am becoming tired soon and sleep for a lot of hours .. Loss of appetite is huge . Dont even feel like eating food , I have left all the chemical stuff ( Using NON -GMO Products , Organic , Left Soda ) , I was also given shots for boosting my Blood cells as I was notified that we will loose our good cells when going through Chemo

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Dr_WHO : I have been reading a lot of your post , Thanks a lot for your support and contribution . My PSA was is 2.7. My weight has reduced drastically , My weight used to be : 150.79 lbs ( 68.4 kilos ) , now it is 143.96 ( 65.3 kilos ) , is weight reduction so drastic , Also my hair loss is terrible , I am loosing almost 200 to 250 hairs every-time i comb a day ..

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I am still on : Casodex , Apart from this I am also taking Multi vitamins as well .

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Hang in there! Hopefully you will get your appetite and hair back now that you are done with chemo. How are you going with Casodex? If you are having issues with Caxodex you could try Lupron and Zytiga together. They work different than Casodex as they stop production of testosterone (cancers food). Casodex works by preventing the cancer cells from absorbing testosterone in the blood.

Again, sorry that you had a hard time with the chemo. Please know that we are all pulling for you!

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Honestly , Casodex is the 1st medication that I was given so i am now sure about Zytiga and Lupron , I will ask the Doctor , Based on the personal experience what do you think is the best option ?

Normally how many sessions of Chemo is recommended if you are in Stage 2 . Also is there a time frame we need to wait before sessions , I know insurance is going to give me a hard time , But wanted to know if there isnt a delay its better to do back elsewhere where its cheap and affordable .

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As a fellow warrior, not a MD, I would look at Lupron and Zytiga. I can not say any comment on low long to be on chemo. Depending on what future scans and PSA levels show you may want to research external radiation.

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Dr. WHO is right - a radical will do the trick. I was diagnosed with stage 2 in 2002 - I had a radical, but the pathologic stage was T3a - capsular penetration... still, I was clear - PSA less than 0.04 for 12 years...and, I had 3 years of slowly rising PSA, sawtoothing between .12 and .18. I hit .2 this December, and have just begun radiation treatment. My radiological oncologist says he fully expects me to be around 15 years hence (we'll see...). So, my situation wasn't perfect, and I've bought time - buy you may be able to be cured...

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Stage 2 is low and early. Worth your attention for sure but also you have time to consider your options. Take the time.

Try to find an UsToo prostate cancer support group. Your wife can go too. Even if you are not into support groups, going a couple of times might help give you perspective. You have a lot of options to consider. If you have not yet seen an oncologist (maybe you have only seen a urologist?) then go see one. Or if you have, maybe make a list of questions and make an appointment and tell them you want to review your diagnosis and treatment in detail (so they schedule enough time).

From the start with my husband (diagnosed at Stage IV), we have kept one book of notes. We are kind of excited because 4 years later, we will need a second book soon!

You should know the meds you are on and what scores mean -- thus the book. We write down stats at every doctor visit (weight, bp, PSA, etc.)

Usually, you start on Casodex (or similar) which is an oral medication that reduces testosterone, which is the main food for prostate cancer. Often this works for years. Sounds like that may be your medication?

Lupron is next, but often they wait to see how the Casodex does alone. There is a desire to hit it hard with everything but here is what our consulting oncologist recommended to us. We had a lot fewer options at Stage IV but here we are at 4 years. - Dr. Small at UCSF used a Pony Express analogy. You want to ride each horse as long as you can before switching horses. So basically you can extend the whole treatment as long as possible.

- Surgery options and all that, we didn't have to deal with. But when we went to UsToo, it was a lot about that sort of thing. Most of the people at our UsToo group were Stage 2 and trying to figure out the best course -- surgery or wait, which meds, etc., and some had been through it so could share their experiences.

- I'm not a doctor but chemo seems premature for Stage 2. I think that is usually reserved for aggressive Stage 4 cancers. It's a recent development based on the CHAARTED study (around 2014). The idea of chemo is to target more aggressive cells while the standard treatment goes after the "regular" bad cancer cells. Chemo can be repeated, I think, with a certain amount of time in between, but there are all the other side effects and immune system compromise to worry about. I'd make sure you feel fully informed before going to chemo. Radiation to the prostate is a bit different, but also with radiation, be sure to talk to a radiation oncologist for the best advice, because there is a degree to which you cannot repeat radiation on the same spot.

This is a great site and very helpful. And I'm not all suggesting you don't use it, but realize that most of the people writing on this site are dealing with (or partnered with) advanced and aggressive prostate cancer. Some of the scary things here may not apply to you at your stage so try to keep it in context. There is also an incredible amount of positive energy on this site -- and long-term survival of advanced disease way beyond expectations.

It is a scary diagnosis. Education is key. Asking questions. Getting informed. You can try to see a specialist at a research center for a consult. Seeing Dr. Small at UCSF has been awesome for us. He doesn't manage hubby's care, but he's an expert in the field and knows everything going on with PC. So he's a great reference -- and our regular oncologist is happy to have him on board. There are research centers all over the country. In addition to the doctors, they usually have extensive patient libraries for more info.

Good luck. Stay happy, or at least positive.

Brenda

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Thanks Brenda , You are absolutely right , Casodex is what I am on currently and my doctor has also recommended me an injection every 3 months . They have also mentioned that It is not spread to my bones and also mentioned that Chemo is an option .

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Team , I was recommended Chemo and I took it . It was a tough one , But I had support , what I have felt is I am becoming tired soon and sleep for a lot of hours .. Loss of appetite is huge . Dont even feel like eating food , I have left all the chemical stuff ( Using NON -GMO Products , Organic , Left Soda ) , I was also given shots for boosting my Blood cells as I was notified that we will loose our good cells when going through Chemo

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Team , I was recommended Chemo and I took it . It was a tough one , But I had support , what I have felt is I am becoming tired soon and sleep for a lot of hours .. Loss of appetite is huge . Dont even feel like eating food , I have left all the chemical stuff ( Using NON -GMO Products , Organic , Left Soda ) , I was also given shots for boosting my Blood cells as I was notified that we will loose our good cells when going through Chemo

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Team , I was recommended Chemo and I took it . It was a tough one , But I had support , what I have felt is I am becoming tired soon and sleep for a lot of hours .. Loss of appetite is huge . Dont even feel like eating food , I have left all the chemical stuff ( Using NON -GMO Products , Organic , Left Soda ) , I was also given shots for boosting my Blood cells as I was notified that we will loose our good cells when going through Chemo

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This thread doesn't make any sense to me. What am I missing? Why would someone diagnosed Stage 2 take Chemo? Justforunidhu, where are you located and who is your doctor? is s/he an oncologist? I would have thought your two paths after the initial hormone injection would have been surgery or radiation. Unless perhaps you were incorrect about your Staging?

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