I guess I am just lucky. Never was before this but I take it. Diagnosed with Gleason 8 with terciary 5 present. Supposedly successful RALP and margins and lymph node negative. about 7 weeks post surgery I had a 9.6 PSA and after scans there were no findings. Put on Lupron every 3 months. PSA dropped to <.01 undetectable after about a year. Now going on 2 1/2 years with no progression. Having been on Lupron for so long I have other side effect issues as everyone knows and also osteopenia\osteoporosis and have know been taken off Lupron for a holiday. That being said, I still feel lucky because the original prognosis from the urologist was pretty bad. I had been pretty down for a while but now realize that people can survive this for a long time. Yes it is a monkey on my back and sometimes feel hopeless but hen again I know people who were diagnosed with other cancers after mine and are no longer with us. I guess sometimes one of the worst side effects is when people were all so concerned about the fact that I have a stage 4 cancer and then feeling guilty to still be in fairly good shape at 2 1/2 years in. People look at me surprised and tell me how good I am doing. Wow, go figure, something is going right. After visiting so many of these support groups online I now can get a good feeling that I will survive a long time with all the new stuff they are coming out with. I guess I am writing this to reach out to all who are just diagnosed and letting them know that there is hope and do not feel like you are coming to the end but actually being allowed time to regroup and enjoy what you got.
March 2015 – PSA 12ish
Biopsy results – Gleason 9
May 2015 – RRP- Surgical Pathology – 1. Gleason's 4+4 (8/10), bilateral, tumor 5% of gland volume. (See comment)
Diagnosis Comment: 1. AJCC classification: pT2c N0, 2. Tertiary Gleason's grade 5 carcinoma component is also present.
First follow up PSA –9.61- Negative Scans – 3 Mo. Lupron
PSA decline every 3 months from 9.61, .41, .14, .03, finally