I am still in a state of shock as I write this but here goes -
After salvage radiation in 2016, I had reduction in PSA in my first test (from 0.1 to 0.07) but PSA rose with each subsequent test, peaking at 7.5 in April 2017 immediately before I started ADT.
Specialist told me that ADT would get PSA down to 0.1 within 3 months. He also said that it should hold things at bay for 2-3 years.
- after 3 months PSA was still 2.1
- after 6 months (got my test result this morning) PSA is now 15.9!!
I also had a testo result. it measured 0.4 nmol/L (about 12 ng/DL) so this is nice and low. I am waiting on results of a DHT test (blood sample was taken 31 Oct) - there are no labs here in Melbourne that test DHT and blood has gone to Sydney for analysis.
Before we start throwing more treatment at this, I really want to understand what is going on here. My PSA before RP was 7.8 (0.026 immediately afterwards) and this is now a record PSA. PSMA scam in April showed a single nodule in my pelvis, I don't have any other mets (well I guess this is now an incorrect statement). What other tests should I be looking at or is it best just to throw the kitchen sink at this now?
I know that many men here have extensive mets and much higher PSA but I also see that most people do respond to ADT for some period. I seem to have become carstrate-resistant almost immediately. Anyone else have this experience?