Hate to bring up this topic, but pain has been my dominant issue going back to 4 months before my diagnosis. The recurrence of cancer 3 months ago has changed my focus somewhat and the change to a medical oncologist who wants the pain minimized has almost eliminated this problem for now
Did anyone else experience severe pain as an initial symptom?
I wouldn't say it was severe pain, but what cause me to seek medical evaluation was that at age 43, I was having ED, nocturia and groin pain. Any of the three would have been odd, but with all three, I knew something was up. Of course, like my internist, my first thought was that I must have an infection.
Where is your pain now? I read your profile but didn't see whether the pain was still in teh prostate bed or somewhere else--like bone pain.
Yes, i was undiagnosed until i presented with severe back pain - mri showed tumors pressing on spine and nerves. I was in hospital 7 days with nerve pain until they did an RFA on the tumor to shrink it. But now im on chemo round 5, feel like i did 2 years ago, and PSA 0.3 at last measure.
I didn't have any pain when I had a biopsy , around 2 weeks after the biopsy it was very uncomfortable around the pelvic area. I did get blood in my urine a couple of days after the biopsy and was told it might happen because of the procedure. it seemed the uncomfortable feeling started to get more intense as the weeks went by so I took naproxen ,and canaby regime for it and it went away, I haven't had any more pain since . I don't take naproxen anymore either . my radiation doctor did a digital exam and he said it was normal size with out any bumps, so I am hoping with all my protocols and diet change something is working. my doctor mentioned to me to take B12 too , I read it is good for cellular energy production. is there anybody taking B12 and with any positive results ? my PSA started a 7 and and went 9 but when I was given Lupron and casodex it dropped to .4 , I was hoping for something like .02 but I will take it at least its not 9 anymore. I started radiation treatments and will be on till Dec.22,
God Bless and prayers for a healing for us all
Robert
Never. Actually, never say never. Eight years ago, next month, I had a bout of Diverticulitis that was awful painful. If not for that, I wouldn't have found out I had St. 4 PCa. When I did develop severe pain, my Uro said it was the cancer. What my Uro didn't do, was read the medical records he had in his hands, because I had a blocked bladder. This is how it went down: Doctor A is my Uro (Orth at DVU), while he was out, I saw Dr. B ( Kotler at DVU). He's the doc who made the assessment that I had a blocked bladder, and noted it in my records. But, he didn't tell me. When Dr. A ( Remember him, He's the guy from Delaware Valley Urology, Charles C. Orth) returned from his extended vacation, things went right along. No problems here. When I got mets, Dr. A, handed me off to Dr. C, UroOnc (Keeler at DVU), who questioned why I was there to see him. I said, because Dr. A sent me. On my third visit to Dr. C, I went in with a new problem, Melena, (ass bleeding), as well as severe groin pain. His tech did an ultrasound, and came back with good news, only 128 cc's. But, he said I should go to the ER, which I had planned to do already. That was Friday afternoon, I got a Cat Scan that evening, and in the morning, Dr. D (Goldenberg at DVU) happened to be on call. He said I had a blocked bladder, I said, no way. He then drained two and a half quarts of fluid from my bladder. So, yea, I did have a lot of pain.
Joe
I had no pain at the time of diagnostic of metastatic PCa, none. I went to see my MD because I had blood in urine. I thought I probably had an infection but no infection, did PSA and then bam, it was over 1000. Then bone scan and had extensive mets from crane to lower limbs but then no pain. Pain did come though a few months later and now is quite present.
I presented 4 years ago with pain that had grown to morphine level within about a month to the L4-L5 region of my spine, and also in a lymph node enlarged to the size of a golf ball in my lower left abdomen. Was in the ER/Hospital for 2-3 days to treat pain and to do tests to confirm diagnosis. Very metastatic to 20+ bones and 15-ish lymph nodes. PSA of 5,006. Pain melted away with Lupron ADT. No significant pain to date. Other side effects, though, as I've done various treatments since. Latest PSA on Lupron and Xtandi was 1.4.
Wow! that pain is a nightmare .Im glad ADT helped you. Hang in there!
I started out having intermittent groin pain. Several months later started having severe pain when i urinated. And then blood mixed in. Nothing like leaning against a wall trying to go to the bathroom because it hurt so bad.
I had virtually no symptoms when I was diagnosed with stage 4 PCa. Little discomfort in left hip I figured was old man arthritis but as it turned out was a bone met in my femur. Nearly 3 years since on the dread Lupron with Casodex. Recently had to switch to Xtandi as it was showing resistance. PSA doubling time was 3 months and Xtandi has brought it back down. Still relatively pain-free, but muscle loss and fatigue are terrible
Seems I found an answer to the severe pain problems I’ve had for the past 4 1/2 years. In the past two months I have started Zytiga and had 5 radiation treatments to an L5 tumor. The tumor has been visible on scans for awhile. This time there was considerable growth and the decision to zap that mother followed.
I have been told from day 1 that the pain did not come from the cancer. Why would I be told shit like that by multiple doctors including some of the rock star places?
Also what did the magic? Radiation, Zytiga, or just blind luck?
Advanced prostate cancer
Brca1 and metastatic prostate cancer 
Advanced prostate cancer
metastatic prostate cancer 
