I'm new here, Diagnosed in Oct 2016 with stage 4 (T3b N1 M0) tumor with seminal vessel involvement and Gleason scores of 8 & 9. On casodex, Eligard and have undergone 45 rad treatments (IBRT). PSA started at 7.39 now at .97. I have been reading this blog for 2 months and am surprised that no one has mentioned IP-6. I know some here are into natural treatments, IP-6 is unique in treatment of cancer as there are a lot of positive studies available and many anecdotal statements testifying as to the efficacy of this supplement. I am beginning to take 8 grams/ day in 2 doses on an empty stomach. Personally I will never take chemo, The research into this supplement has been buried by the pharmaceutical machine. The testing they did was at minute levels which would never prove viable. The great thing is this is a natural supplement with nothing but good side effects. Google & read
Bill Ash
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Billash
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Hello. It seems like we are sole mates. I was diagnosed about a year ago with G8, T3N1. Unfortunately mine was a rare form (Ductal), which is hard to treat and does not always raise your PSA. My treatment: surgery (had to argue to have it as cancer was in my lymph nodes), eight months into two years of hormonal (Lupron), and 38 rounds of radiation.
I have not heard of IP-6, but a fast search showed a lot of reference to it. Thank you.
Have you considered modified citrus pecan? There has been a lot of studies for its use for prostate cancer.
Regular citrus pectin has to high of molecular weight (Mwt) for the body to absorb. They modify it though either high temperatures or reaction with caustic to break it up into smaller strands that can be absorbed by the body.
Here is a 2017 overview of it as well as other natural remedies.
Hey Bill, In the top right hand of each post page, there is a search box that says "Search Advanced prostate Cancer", if you search for IP-6 in this box, you'll see there has been quite a lot of comments about it.
Still learning, thanks for the response, real good info
Bill
Bill, I hope that you will consider chemo as an option. Others here have talked of the benefit and that some tolerated it pretty well. I am early in my journey so I suppose it is easy for me to say. I don't face that decision any time soon, but it may be coming. Please at least research it.
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Hi Ed,
I'm of the opposing thought that no chemo as long as I can help it. I've seen what chemo can do to a person. You're absolutely correct that some handle it rather well, but what about the rest who don't post their reactions, or we missed their post. I'm seven years with St.4 and bigly numbers. I'm at the Zytiga level, I'll call it. It's considered a chemo too. The same with Xtandi. Both of these newer drugs effect men differently, some can tolerate one but not the other, and both work for lengths of time the are so variable, it's like a roll of the dice.
@Yostconnor posted that he was on Zytiga for 27 months, which is something I would like to duplicate. When it does fail, I'll go the Xtandi, and wait til that fails. When this happens I hope another new drug is available to delay IV chemo.
Joe
• in reply to
Your decision do it us right for you. Yet, ask yourself why wait for chemo when your body is weak and eaten up with cancer ?
I was a Stage 4 thirteen years ago and under went a chemo trial within two months of discovery of mets. I haven't looked back. Today undetectable and last Luoron injection was seven years ago.
Godspeed.
Gourd Dancer
• in reply to
Good for you brother. I know one day I'll be there just as you say. I just remember how my dad went when I was 17, it wasn't pretty. I know chemo has come along way in 40 years, but I'll never forget his suffering.
Joe
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I certainly understand Joe. My father went at 59. My guy told me in 2004 that they knew how to kill cancer in 1978. The problem was how to kill the cancer without killing the patient. Researcher's have been working on dosages and new agents ever since. He further said that every way he sliced and diced the mice, it was cancer free and I thought that he had the human dosage down. Amazing that I did not lose my hair, body hair only. Straightened the curl, but kept it by and large. Zofran for nausea and stayed out of the heat and sun. Chemo works by killing cells that divide. Hair and nails. And rapidly dividing cancer cells.
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What treatment next??
WHAT SHOULD I DO NEXT ?
Adding Zytiga Post-Chemo - necessary?
