Eddie (56 years old). Was diagnosed with Prostate Cancer 5+ years ago. Gleason Score = 8, Stage 3, PSA = 34. Underwent a radical prostatectomy which included removal of some surrounding nerves. Was cancer free for over 5 years. In January the cancer had returned with a PSA of 0.008. About a month later PSA was 0.01, a couple of months after that PSA was 0.04. I have been told I am genetically inclined to have rapidly multiplying cancer cells. It was determined I would need radiation right away. I began radiation with a PSA of 0.045. Have had 3 weeks of treatments that are every day Mon. – Fri. for a total of 8 ½ weeks.
I am most interested in finding someone with recurrent cancer (contained in the prostate bed) that has had success with an alternative treatment.
Given this information, are there any alternative treatment programs you know of that could be of benefit?
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ecolvin
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My RP, 12 years ago, immediately failed, as did salvage radiation. I had radiation on a solitary bony met last year, which seems to have reduced my tumor burden by two- thirds.
So far, I have avoided Lupron & the rest. I think that most men with PCa start out with some supplements, but I know a number who lost interest when they moved to heavy duty meds. Nonetheless, I continue to believe that there is incremental benefit in the stuff I take.
Too many topics to cover here, so I'll refer you to my posts. I am slowly working through all the topics that interest me. But I'll mention a few things.
IMO, coagulation factors, which are always altered in cancer, facilitate metastasis. Monitor D-dimer & fibrinogen. Can be controlled with nattokinase at proper dose.
Basic inflammation markers predict increased mortality risk. Eliminate inflammation & the cancer will slow down, IMO. Good starting point: albumin & C-Reactive Protein. Aim for albumin of at least 4.5 & CRP very close to zero (the reference range is too wide).
Non-PCa meds that seem to affect progession: Metformin (2,000 mg) & statins.
During the 3 month Prostasol cycle how low does your PSA get and during the 3 month T Patch cycle how high does your PSA get...do you always go 3 months on the T Patch or does a certain PSA level trigger your move back to Prostasol.
At the end of end of the 3 month T cycle, I test PSA, but I have already begun the Prostasol the following day, before the result comes in. I'm quite rigid regarding the 3 month cycles.
The result used to be in the 35-37 range, but since radiation on T5, it has been 14-15.
I used to get a PSA test at the end of each 3-month Prostasol cycle, but often skip it now. With 2 caps/day in the first week (dropping to 1), I could drive PSA down fast & get below 1.0 by the end of the 2nd month. Otherwise (1 cap/day throughout), it is above 1, albeit close to it.
A complication has been in having to move from a daily T patch to weekly injections. 7 days after the injection, T is still above 1,000 ng/dL. My belief is that Prostosol does not require castrate T.
I tried T + Prostasol ~5(?) years ago. The PSA became very low, but higher than the usual low. T was above 1,000, but free T was lowish, since SHBG became extraordinarily high. This is my basis for not being concerned by non-castrate T levels.
I know 2 men on Prostasol who have normal T. One man has PSA very close to zero & T around 650. In his case, the hypothalamic–pituitary–testicular axis doesn't recognise Prostasol as being estrogenic, but his prostatic alpha estrogen receptors clearly do.
When my Prostasol stash runs out, I will switch to 1 mg DES (same cycle) - assuming I am still responsive.
I think Patrick's reply has much merit. I have watched with interest the huge amount of effort he has put into nutritional and supplementation research. As a regular speaker on the Australian PCa Support Group circuit, I have come across many men that are looking for solutions to recurrent cancer. Often radiation and other treatments are not suited as salvage techniques.
Of course, in cases of some men, they have metastatic cancer which is a much more challenging condition. A number of people close to me are in that stage. In addition to conventional therapies, there are numerous alternative therapies that selectively may assist people in your situation and those that are in the metastatic stage.
I have just released on Amazon a new book that thoroughly covers these circumstances. See An ABC of Prostate Cancer Today - 2nd Edition. Sorry about the ad, but its content is already helping many men.
It would be hard for me to write so much here. The book is called the Cantin Ketogenic diet. It is a more balanced approach combining other info along with a modified approach to Atkins .
Dr Atkins had a cancer wing, and over a few years he was not able to make the progress that he had hoped for against cancer using a ketogenic approach, I hear.
Ketones for energy
The point of the ketogenic approach is to switch the body from using glucose for energy to using ketones for energy. Since cancer cells require more energy, they may not be able to make this switch very well. I believe that that is the overall concept.
Surely you can point to an article that makes what you think is a cogent argument. Here is one I found without too much trouble: chrisbeatcancer.com/dr-gonz...
You will find some good information on the Ketogenic diet specifically for cancer on Dr. Dominic d'Agostino's website: ketonutrition.org --click on "resources" for information on the diet as modified for cancer. The short version is that it is high fat, moderate protein, and very low carbohydrates (12 grams/day). We have been following the diet for over a year--it is actually very sustainable and in fact quite delicious. Sometimes we use a combination of the diet and fasting.
If I had complete choice of what to do, I would start with a C11 scan at the Mayo clinic, to see if there is a site that can be locates. Their might be just one site of cancer, and it would certainly help to know that, and where it is. Not what you asked, I realize.
What is the basis for the assertion that you are genetically inclined to have rapidly multiplying cancer cells? Are they saying your normal cells have an inheirited genetic weakness? Curious to know what that would be. Or are they saying that analysis of the removed tumor shows a progression along a known pathway (vogelgram) that is pernicious.
I favor remedies that have a good shot at an upside and little or no shot at a downside, although that does not extend to selenium enriched pomogrante juice. It does reach to mega dose Vitamin D3, 12000IU spread out through the day. And next, statins. Have I said this before?
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