Has anyone checked out Brillia or know anything about it?? I keep seeing their ads on Facebook but am quite skeptical on how it works and its safety...not even really sure what it is? they say its an antibody?? thank you in advance!
Brillia?: Has anyone checked out... - CHADD's ADHD Pare...
Brillia?
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Spartan71
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I also what to know about it
I know this is an obvious question but, have you tried Googling it to find out more about it? If so, what have you found? Anything from any credible sites?
Hi ...yes I googled it and I looked and I looked and the only info I get goes back to their own website or a blog created by them or their own Facebook page . There are good reviews on their Facebook page but nothing from an independent source. There are also some studies done in Europe but it’s a chore to sort through. Just looking for some outside recommendations from people that have tried it
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It looks like Brillia is an homeopathic remedy. Here is a link to a WebMD page about homeopathic medicine:
Read their webpage. The product is a homeopathic dilution of an antibody to a brain protein. They offer no evidence that, at the homeopathic dilution, it has any effect or that it can cross into the brain. They say it has no side effects. This bothers me since it implies it has no effect (every drug or anything we put into our mouths has the potential for a side effect - too much water leads to increased bathroom visits, too much food leads to weight gain). When the vendor offers 'testimonials' rather than science, you should be skeptical. I agree with their 'pillars' of good sleep, good nutrition, mindfulness, and limited screen time, which apply to all individuals. Wonder how much is a placebo effect or just improvement over time.
Please check this out again there have actually been a large number of clinical trials some which are listed directly on their website. They recently developed a dose for adults which I am taking. I've been taking it for approx. 2 weeks, it appears to be helping a lot HOWEVER there were not trials for adults. As someone who is very aware of her mind, I think I experienced some side effects last night in the form of overstimulation. Now, I cannot be sure that the cause of my high brain activity that felt a bit like panic, was caused by the medicine. The reason I think it may have been was because I took a little bit higher dose, 3 instead of 2 pills. I have been taking 2 pills three times a day for 15 days now. You aren't supposed to take more than your recommended dose if you miss one. I didn't miss a dose I just decided I wanted to see if more would help me more. The next dose level after mine is 8 total pills a day. I'm on 6.
It does warn that it can have activating effects don't take it around bed time. I've also been anxious as someone tried to break into my house. So if anything the side affect is proof that it works.
As far as the good, I'm 26, never been diagnosed with adhd but it's pretty clear after a lot of research that I was missed. Likely because I'm a girl and likely because my parents never addressed .my emotional issues.
I started brillia and though the change is subtle in just two weeks my sleep is more restorative, I no longer nap, my energy levels are consistent, my ability to keep track of my priorities and time during the day is possible, I drive more attentively, I do not beome overwhelmed by a large amount of information and emotionally, which is the biggest part, I am able to think before I react to my feelings. Which is the biggest thing in the world for someone after 26 years of suffering from impulsivity.
So take that how you will.
That's the goal girl! After reading this I'll be sure to try it because I have a wedding coming up in less than a month, and I'm having such a hard time getting things done cuz of my ADD which has been getting even worse lately resulting in me forgetting the topic of my conversations mid-sentence. And I'm dying to become a less dramatic and more productive/less impulsive helpmeet to my future husband. I'm excited to be able to control my thoughts before I react because no matter how hard I try to focus and remember to think things through before I speak, I never do because I forget.
So I've been on it three months now and I will say this. It is imperative that you also do other things to help your health: have therapy, take meds for other problems, get exercise, get sleep, reduce stress as much as possible, eat healthy. The brillia really helps me Unless I'm overwhelmed by other problems. They do still help me keep my cool when I'm struggling though. No more losing it on my hubby. It's been hugely helpful..(oh wait except one time where I didn't sleep all night then after a caffiene crash and pms I did blow up. But hey we all have those days)
They have done studies and these are on their website. We tried the synthetic methamphetamine and then Adderall. Both had terrible side effects on a9 year old including an awful skin reaction. Brillia has worked with no side effects. I HIGHLY recommend this as there's no withdrawals if you find it doesn't help.
Put me down for the "skeptical" camp.
I just read all the documents on the Brillia website. Which includes the details of the 2 double-blind trials (1 for anxiety and one for ADHD). The data clearly shows that Brillia performs better than the placebo. The data also shows that Brillia helps reduce (not eliminate) symptoms. The reduction seems to be in the 10% range. Which can be enough to take someone from severe ADHD to moderate ADHD... But I would still like to hear from independent families who have actually used this product (not from families whose statements are advertised on Brillia's website). Anyone out there who has used Brillia and is willing to comment?
Ok, so I am trying Brillia out for myself as well as my child. I don't have ADHD but anxiety, especially due to the current crises in the country. I take some prescriptions too. I have been pretty good about taking it twice a day every day. For myself, most of the time, it helps me focus and not freak out if I hear the news. For my child, it's harder to judge.
Ok, so my daughter, who's 6, has never had an actual diagnosis, long story there, but I would say in Nov 2019 that she had severe ADHD. Why I don't say this is the case now, is because she had neurofeedback for several months and it really helped her. It didn't completely go away, it's not a cure but I'd say she has mild ADHD now. Anyway, I wanted to try Brillia on her but it's been mixed. I haven't given it to her everyday, because I'm hesitant. Sometimes it seems to help her and she actually started reading. But then sometimes it seems like she's regressed to how she was sometimes in the middle of her neurofeedback treatments. I mean with the bouncing off the walls, screaming for fun and getting in people's face for fun. But, the days when she has taken Brillia, she's able to sleep through the night pretty well and not need me there half the night with her. So it's a very tough thing because I feel like I have to choose, if she takes Brillia, am I ok with sometimes hyperactive days, sometimes that are really bad, so that I can have better sleeping through the night. I'm leaning towards I would rather our days go smoother so that's why I'm not sure if I should give her Brillia.
Hey! So I have my son using it since June 10. And I cannot believe how much of a change he has gone through since then. He takes the pill 2xs a day. He is not as wild, he can focus and he’s more patient, caring, reflective. He can process his emotions better. Doesn’t curse or have ma hot angry outbursts. It’s incredible! I think I am going to try it out for my anxiety.
This was very helpful to me. I have been hesitant to try it for my son who is 12 and has had a terrible year. I have been looking for reviews outside of their website. Thank you so much.
How many pills twice a day? The site mentions 1 pill 3 X a day or 2 Pills 3 X a day. Curious to see what is working for people. My daughter is a moderate Anxiety level.
My child was on it, there were improvements after the second week, then a little more after week 4-6. We ran into some bad side effects which we had to stop.
So, yes I think it works, but I don't think its 100% safe as the side effects in our situation weren't worth the risk. Also I feel like there isn't enough information to understand how the s100b protein pathway affects other parts.
This doesn't mean I am all for meds as they have more serious side effects usually.
I feel they are on to something but I think there is more to learn from this.
The more research I did on the s100b protein, the less likely I wanted to keep my child on it as its used as a biomarker for cancer. Not being a scientist doing the research on this, I didn't want to experiment on my children.
futuremedicine.com/doi/full...
ncbi.nlm.nih.gov/pmc/articl...
What side effects did your son have? Mine is 6 years old so trying to gather all info I can before we start. Thanks so much!!
My 14 year old son has been taking Brillia for over a year with great results and no bad side effects. The difference in his behavior was so impressive my husband and I started taking it too. It definately takes the edge off of our anxiety and helps us focus better.
I read the study link you posted about S-100 protein. The research showed increased level of S-100 protein is associated with the presence of cancer metastases, reduced survival and reflects tumor load, stage and prognosis.
Brillia is an antibody to grab on to the S-100 protein. Brillia stops the S100B protein from acting in the body by changing its shape, consequently regulating levels of anxiety and hyperactivity.
In short Brillia does NOT have this bad protein, rather it helps reduce the bad effects of having an over abundance of the S-100 proteins.
Here is some informationintechopen.com/chapters/71930
What dose was he on that seemed to help?
I found this helpful
oatext.com/clinical-and-saf...
I had read this research previously and it’s findings helped me decide to further research Brillia as a possible option for my child with adhd and anxiety. My friend has been giving Brillia for 3 mo now and will go on a break for 1 mo. She saw significant improvement after 3 weeks in anxiety and adhd symptoms.
This study shows that having chronic mental health issues such as anxiety, adhd, depression and I believe even psychosis produces large amounts of the protein S-100 which is believed to be neurotoxic and most likely make it hard to manage these conditions. Regular medicine therapy does not get rid of these proteins, they just treat symptoms.
This is where Brillia comes in. It is an antibody to grab on to the S-100 protein and get rid of it from your system, therefore showing improvement of symptoms. I have read that when it doesn’t seem to work l, they have gone to the next higher concentrated package and it did help. Ex) using Brillia child package, no improvement after 2-3 month, gave Brillia adult mild dosing and symptoms improved. Same for Adult, if started Adult moderate, no improvement, changed to Adult severe package with improvement
I am also a professional healthcare worker and believe we need to look at treatment holistically. I am still researching Brillia. But because of these findings, I decided to spend more time researching.
Any input is definitely welcomed
Actually, this is the study that correlates prolonged mental health issues and s-100 protein. It’s worth reading.
Brilliant contains a diluted form of the antibody that gets rid of the s-100 protein that build up around your brain.
I read this as well. As a pharmacist, I was impressed with the study comparing it to placebo. I did wish there was a longer term study. What I ready only extended for 12 weeks. I am considering this for my teenager as her anxiety affects her attention.
I also am curious as to what side effects your child had? I’m considering to give to my own 15yr old with adhd and anxiety.
I didn’t trust Brillia’s ads or other web presence, but I was intrigued by it after discounting the ads for awhile. I googled around and found a few users of it that I was able to contact through social media (but not via Brillia and in one case not even someone who had recommended it but just had mentioned it incidentally in an Amazon ad for a different product). Since they were positive, I decided to give it a try for me and my daughter. We are ADHD inattentive. We are in the earlier days of trial. I don’t see changes with my daughter (who is taking a break from her adderall XR), but it is very early (just a few days). I have always been very sensitive to psychotropic medications and even supplements. What I noticed immediately was some kind of effect. After I took it I felt a bit different. It was doing something, it seemed, but I couldn’t say what. A couple of days into it, my wife asked me to do some cleaning and organizing I had been avoiding and I found it easier to do than usual (more focus? less anxiety?). Now, I am cautiously optimistic, but at this point I have experienced nothing I would (yet) hang my hat on, so to speak. I’ll try to post again after a bit of time.
Please do
So we are now past about 4 days with Brillia. Here's what I notice. My brain fog seems to have resolved. I don't feel the wall of resistance to doing things that I did before. I can't say that this isn't placebo. But there is a pleasant lack of anxiety that usually I carry with me. I feel lighter than I have for a long time. The question right now, for this moment is, am I feeling this way just because of being relaxed during the holidays? It could be. But usually my anxiety and inertia persist somewhat even during relaxed holiday times. I have been hesitant to ask my daughter too much if she notices anything, since I want whatever effect will happen to be observable by me. (In general, I don't have a harsh command and control mode of dealing with her about taking her adderall. She lives with me half time, and if she doesn't want to take her adderall when she's not with me, there is not much I can do. And her other parent is less attentive to her habits in this regard. As a result, I give her a lot of latitude in determining how she feels. She knows adderall helps her, and so, she is generally motivated to take it. So, by this token, I trust her self-observations to a certain extent.) When I asked her, her response was, "my brain feels less like mush." To me, that's a pretty strong statement. I told her in response that I feel less of what I call "brain fog." I'll try to keep posting. I've lived my life with ADHD-inattentive and have figured out a lot of work-arounds, on the one hand, and just had to deal with incapacity on the other. I'm hesitant to get too excited about what I'm experiencing right now, but I can't help but wonder if this is turning out to be an amazing breakthrough. Even if it is, I am cognizant that I will have to lose some old habits. Also, I'm cognizant that the makers of Brillia don't like to talk about it as a "miracle cure." (NOTE: I have always been ***extremely*** sensitive to psychotropic/neurotropic drugs or even supplements; medication that is supposed to take days or weeks to be effective for others has worked instantaneously for me -- and this has applied to pharmaceuticals with radical impact. I note that Brillia says that results aren't usually visible until a few weeks in. I take less adderall than my daughter does, such is my sensitivity to it, as another example.)
Two months later, do you have a new update? How is it working for you now?
Unequivocally good for both me and my daughter. Reduced anxiety/happier, greater clarity, greater focus, reduced resistance to doing things I need to do. Not a panacea, but a godsend. My daughter just told me that she has cut back on her adderall as a result. I’ve stopped taking adderall. If you want a very detailed recounting, Google for Reddit, Brillia - my experience recorded posted by Bisterwhip.
Hi,
I saw that you are sensitive to medication. My daughter is too. I ordered the adult moderate because she is almost an adult and I was going by weight, but I'm not sure whether I should start at that dosage. Would you mind sharing your dosage and how you came to it?
Thanks
To be clear, Brillia is gentle in effect; it is nothing like stimulants such as adderall in this regard. When I say I'm sensitive to medication, I mean I tend to notice the effects quickly. I suppose that's related to dosage, but what it has meant in practice is that lower dosages tend to be enough for me (of drugs affecting the brain/mind). I believe Brillia suggests starting out with the adult moderate dosage, and then if needed, working one's way up. I would follow what Brillia says. I'm a male who weighs 190 pounds. I followed their advice and it turns out to be enough. Again, the downsides don't seem to be that risky, as it's gentle and cumulative.
Thank you for all of your posts in relation to Brillia. I have found them to be really informative and helpful.
If you want much more in depth: Google front page of the internet and Brillia - my experience recorded. On Reddit, in other words. Bisterwhip - username.
My stepson, 11 years old, is on it, and it seemed to work for him after a few weeks. But he is starting to go back to old behaviors. I tried it on my 5 year old and it actually caused his behaviors to worsen. I have since put him on All-Star 5 in 1 Bio-Heal Probiotic. It has digestive enzymes, zinc, vitamin C, and other things. He has been on it for a few weeks and I’m starting to notice some changes. I just wish there was something else out there besides the prescription medications. I will, however, consider those as well if the behaviors don’t improve in the coming months. I am also going to get him into behavioral therapy. It’s all just so frustrating and difficult for him and us. I just want him to be able to be successful in life and the fears and anxiety are real.
Sounds tough. Good luck. My daughter was very helped by adderall Xr, though she doesn’t love to take it. I think a benefit of medication is that it shows the kids, so to speak, how to be more functional. It makes them aware of their lack of focus.
My daughter said about adderall, “it saved my life.” Now, at the same time, she doesn’t like to take it. Paradoxically. But I’m the same with it. That’s why for us with Brillia having some effectiveness, albeit of a completely different sort, being able to cut down is wonderful. I’m glad to hear you are open to the medication. It was an absolute last resort for us, but it changed everything. Unconventionally, I let my daughter guide her own decisions regarding when to take it and when to take breaks - and she is diligent about making good decisions. I also supplemented with magnesium, zinc, vitamin c, tyrosine and fish oil, some taken at different times of day to help shave the bad side effects. Some people will say to not take any breaks, but that doesn’t work for us. She’d have weeks where taking it 4 days out of 7 was right. Also, it helps with being aware socializing, so it’s not just for school days. I say all this because if medication becomes your only option, remember my daughter’s words about it saving her life. It might have been hyperbole, but those are the words she chose about how she felt. I wish medication had been available when I was her age. Best wishes.
Good to hear that it helps. I am planning to give to my son to try as he occasionally can’t focus n anxious.
I order brilia to try, waiting as soon as I start I will give updates
I TRIED BRILLIA FOR MY 16year old son!It def. helped him and I noticed results within days! However I couldn't keep up with it. It caused nose bleeds in him, My son is very prone to that. I stopped because I didnt like that feeling. I might start again slowly. BTW Company was very understandable and refund my money, If you think this is an option for you do try it like as I said I did notice a difference within days of using this. And also if anyone else's kid or they are prone to nose bleeds?Whats their strategy to deal with it, It specially happens whenever I start something new with my son even kids vitamins!
For nosebleeds would recommend a humidifier in the bedroom at night. Game changer. It keeps the sinus passages dry. If traveling we use saline nasal mist and that helps as well.
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