Club zero getting closer - My Actemra story continues
I’m currently flip flopping between 3mg and 4mg of Rayos ( time released Prednisone ) and my weekly Actemra shots. My only reminder PMR if th...
I took my first injection on December 21, 2017 for GCA and felt already much less fatigued the next morning....
Hi everyone ! Just a quick update....
So far I have had 5 injections weekly. At over $200 it is not cheap, however I am off steroids and able to do things....
NEW to this site
Started Actemra injection last Friday is any else on this drug for the treatment of PMR?...
Low adrenal function at 6.5
For the pro. Finally talked my endocrinologist into doing a cortisol test at 6.5....
Medicare accepted my Actemra infusion claim!
Yeah, it is a good day. My Medicare part B accepted 100 %of my Actemra infusion claim....
I need help deciding:
But if I'm going to maximize the possibility of getting Actemra once it is approved for PMR, I'll need to make a decision by mid November whe...
GCA and Actemra
Diagnosed in November. On prednisone and Actemra....
Me and biologics
Morning all. Am starting my 3rd biologic soon....
I totally realize that there aren’t many of you with GCA that are on actemra infusions....
In my previous posts I mentioned I would stay on 5mgs of Pred until I see the Rheumy on January 9th! The reason being she wanted to see how e...
To PMRPro or anyone knows my crazy history feel free to pop in
After two years and three months of GCA and high prednisone and for the three years prior PMR, I am trying not to lose faith....
I am 70 years old and was in good health until I ' joined this club ' with GCA and PMR in June of 2016 with a positive diagnosis in August of...
Actemra (Tocilizumab) tummy problems
Happy new year all. I hope you had a lovely Christmas....
Actemra quit working - now what?
I should say that the pain and flares are back with a vengeance despite my labs looking the best they've looked in a decade. My hands and fee...
After re-reading my Rheumatologist’s chart note I need to correct my tritration schedule that I posted earlier. So here goes....
First Actemra infusion update
I made it! From beginning to end I was at the infusion center for 3 1/2 hours....
Actemra being sued???
Why is actemra being sued?...
Giant Cell concerns
Was diagnosed with PMR August 2017, Giant Cell Dec. 2017......
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