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Actemra
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Does anyone who is on Actemra find it lessens fatigue?
This seems to be worse than when I was on
Actemra
and I am wondering if it would help to go back on it. Just wondered if any of you on
Actemra
noticed you felt less fatigued once you started it.
This seems to be worse than when I was on
Actemra
and I am wondering if it would help to go back on it. Just wondered if any of you on
Actemra
noticed you felt less fatigued once you started it.
Kt1943
in
PMRGCAuk
21 days ago
Actemra
PMR treated with biologic
Actemra
in US. Any of you have tried this one? My doctor is inclined in me starting this medication. I was able to stop completely Prednisone, only to begin again three months later. I had normal ESR and CRP for two years. Now it’s elevated again, though not a lot.
PMR treated with biologic
Actemra
in US. Any of you have tried this one? My doctor is inclined in me starting this medication. I was able to stop completely Prednisone, only to begin again three months later. I had normal ESR and CRP for two years. Now it’s elevated again, though not a lot.
Alliswellforever
in
PMRGCAuk
28 days ago
Actemra
PMR treated with biologic
Actemra
in US. Any of you have tried this one? My doctor is inclined in me starting this medication. I was able to stop completely Prednisone, only to begin again three months later. I had normal ESR and CRP for two years. Now it’s elevated again, though not a lot.
PMR treated with biologic
Actemra
in US. Any of you have tried this one? My doctor is inclined in me starting this medication. I was able to stop completely Prednisone, only to begin again three months later. I had normal ESR and CRP for two years. Now it’s elevated again, though not a lot.
Alliswellforever
in
Fibromyalgia Action UK
28 days ago
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actemra
rheumatologist wants me to put me on
Actemra
since I’m not tolerating prednisone that well, what has everyone’s experience been?
rheumatologist wants me to put me on
Actemra
since I’m not tolerating prednisone that well, what has everyone’s experience been?
GivenUp24
in
PMRGCAuk
2 months ago
Covid, Tapering and Actemra
(I am also on
Actemra
, which seems to be working well, in my case.) Should I stop the
Actemra
while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this amazing resource. xx
(I am also on
Actemra
, which seems to be working well, in my case.) Should I stop the
Actemra
while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this amazing resource. xx
Lenore58
in
PMRGCAuk
1 month ago
GCA-Diagnosis
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
4 months ago
GCA..Actemra.
Put on 40mg of Prednisolone and since March of this year have been on
Actemra
once a week.
Put on 40mg of Prednisolone and since March of this year have been on
Actemra
once a week.
Hidden
in
PMRGCAuk
2 months ago
testing for IL6
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Mstiles
in
PMRGCAuk
5 months ago
Continue Forever on Low Dose Prednisone?
Started again on 60 mg prednisone and
Actemra
injections . Right now I’m taking 1.5 mg prednisone and
Actemra
every other week. I see a great rheumatologist and a neuro ophthalmologist.
Started again on 60 mg prednisone and
Actemra
injections . Right now I’m taking 1.5 mg prednisone and
Actemra
every other week. I see a great rheumatologist and a neuro ophthalmologist.
Pamk1949
in
PMRGCAuk
2 months ago
GCA taper
I’m currently on
Actemra
injection once a week after 1 1/2 years. I haven’t had any flares and my assistance will run out. I would like to get off of it entirely if possible. has any one had a experience of getting off it and staying off?
I’m currently on
Actemra
injection once a week after 1 1/2 years. I haven’t had any flares and my assistance will run out. I would like to get off of it entirely if possible. has any one had a experience of getting off it and staying off?
LRevell
in
PMRGCAuk
4 days ago
Looking for typical Prednisone reduction schedule new on Actemra
This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting
Actemra
at the urging of my rheumatologist.
This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting
Actemra
at the urging of my rheumatologist.
JanetGarrettN
in
PMRGCAuk
1 month ago
Update on LVV relapse, and thoughts please?
As you might remember, I have been on
Actemra
since 2020, prescribed for LVV. At the end of June, blood tests showed that I had relapsed, although I had no physical symptoms.
As you might remember, I have been on
Actemra
since 2020, prescribed for LVV. At the end of June, blood tests showed that I had relapsed, although I had no physical symptoms.
LemonZest11
in
PMRGCAuk
28 days ago
Broke My Clavicle
Also have been on
Actemra
, although I suspended it while getting over Covid. I’m about to take another dose, as over Covid. My question is, should I up my prednisone?
Also have been on
Actemra
, although I suspended it while getting over Covid. I’m about to take another dose, as over Covid. My question is, should I up my prednisone?
Lenore58
in
PMRGCAuk
1 month ago
Jaw locking while tapering for GCA
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
Bummed24
in
PMRGCAuk
5 months ago
giant Cell
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
LRevell
in
PMRGCAuk
5 months ago
Giant Cell Arteritis
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
LRevell
in
PMRGCAuk
7 months ago
Trip to the Er/ED
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Lenore58
in
PMRGCAuk
5 months ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Kaaswinkel72
in
PMRGCAuk
3 months ago
Facial Numbness
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
Lenore58
in
PMRGCAuk
3 months ago
Antibiotic and Actemra
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
ILbbHpmr
in
PMRGCAuk
5 months ago
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