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Giant Cell Arteritis
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
LRevell
in
PMRGCAuk
13 days ago
Ongoing headaches
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Bummed24
in
PMRGCAuk
29 days ago
Melanoma Surgery while taking Actemra and Prednisone
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
Pamk1949
in
PMRGCAuk
12 days ago
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Actemra and Extremely Fast Taper off of Prednisone
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
newsusy
in
PMRGCAuk
14 days ago
Quantiferon TB Golf test before starting Actemra
My Rheum wants me to start on
Actemra
for my GCA. He prescribed a Quantiferon TB Golf test (IGRA) before starting
Actemra
. Would like to know if anyone else had to have this test before starting
Actemra
. Also, for those that were on
Actemra
, how long where you on it? Infusion or injection?
My Rheum wants me to start on
Actemra
for my GCA. He prescribed a Quantiferon TB Golf test (IGRA) before starting
Actemra
. Would like to know if anyone else had to have this test before starting
Actemra
. Also, for those that were on
Actemra
, how long where you on it? Infusion or injection?
Groda
in
PMRGCAuk
5 months ago
Actemra infusions approved.
I can still say no to
Actemra
. :)
I can still say no to
Actemra
. :)
Bummed24
in
PMRGCAuk
1 month ago
GCA Temporal/ Arteritis
I’m on
Actemra
injection only. It makes me feel a little woozy! Has anyone else had this feeling?
I’m on
Actemra
injection only. It makes me feel a little woozy! Has anyone else had this feeling?
LRevell
in
PMRGCAuk
2 months ago
Lab Tests Indicate High Lipase
I think they are worried about
Actemra
and pancreatitis. Has anyone experienced this, and could it be the
Actemra
?
I think they are worried about
Actemra
and pancreatitis. Has anyone experienced this, and could it be the
Actemra
?
Pamk1949
in
PMRGCAuk
5 months ago
Actemra
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
Larachez2102
in
NRAS
5 months ago
Any advice to get back on track please?
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
Happyexplorer
in
PMRGCAuk
11 days ago
Stopping Actemra
Good day all: Well, I called and canceled my
Actemra
infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma.
Good day all: Well, I called and canceled my
Actemra
infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma.
phebamom
in
PMRGCAuk
3 months ago
Article on blood markers & PMR/GCA
Being on
Actemra
I have reading up on articles that focus on alternative blood markers instead of CRP https://www.frontiersin.org/articles/10.3389/fimmu.2019.01981/full
Being on
Actemra
I have reading up on articles that focus on alternative blood markers instead of CRP https://www.frontiersin.org/articles/10.3389/fimmu.2019.01981/full
Gilmor
in
PMRGCAuk
2 months ago
Stopped Actemra, new questions
What was your typical Prednisone daily dose during your second year of PMR & GCA without
Actemra
? Did you have any bad effects after stopping
Actemra
? Is
Actemra
mostly prescribed for GCA or PMR or both? As always, thank you 🌺
What was your typical Prednisone daily dose during your second year of PMR & GCA without
Actemra
? Did you have any bad effects after stopping
Actemra
? Is
Actemra
mostly prescribed for GCA or PMR or both? As always, thank you 🌺
potterylady
in
PMRGCAuk
5 months ago
Actemra Side Effects?
In late November my insurance approved me for receiving
Actemra
. I did not receive my first dose till last week, Dec. 14. I felt fine that day. The next day I could hardly get out of bed, felt very bloated and nauseous.
In late November my insurance approved me for receiving
Actemra
. I did not receive my first dose till last week, Dec. 14. I felt fine that day. The next day I could hardly get out of bed, felt very bloated and nauseous.
Mooreby
in
PMRGCAuk
3 months ago
Actemra and aches and pains!
As well as being on
Actemra
I have had to take a drug called entecavir as it was discovered that I am a hepatitis B carrier - non-active. No idea I had it until I was given a general blood test before going on the
Actemra
.
As well as being on
Actemra
I have had to take a drug called entecavir as it was discovered that I am a hepatitis B carrier - non-active. No idea I had it until I was given a general blood test before going on the
Actemra
.
Stkeyna
in
PMRGCAuk
3 months ago
Stress--patience--tapering going well...
Now, after just three months, I am at 4mg, along with my weekly
Actemra
. I will drop by 1 mg each month now, and the bloodwork I did a few days ago looked awesome. The
Actemra
keeps the markers in check, but everything, including my kidney numbers, was well into the normal range~!
Now, after just three months, I am at 4mg, along with my weekly
Actemra
. I will drop by 1 mg each month now, and the bloodwork I did a few days ago looked awesome. The
Actemra
keeps the markers in check, but everything, including my kidney numbers, was well into the normal range~!
Grammy80
in
PMRGCAuk
2 months ago
GCA Tapering
My second infusion of
Actemra
will happen in a week. My rheumatologist had originally suggest a taper of 50mg. x two weeks, then 40mg. x 2 weeks, then 35 mg x two weeks with monthly
Actemra
infusions . Way too fast, right?! I'll be seeing him next week.
My second infusion of
Actemra
will happen in a week. My rheumatologist had originally suggest a taper of 50mg. x two weeks, then 40mg. x 2 weeks, then 35 mg x two weeks with monthly
Actemra
infusions . Way too fast, right?! I'll be seeing him next week.
Bummed24
in
PMRGCAuk
9 days ago
Ending my Actemra next month
Ive been on the weekly
Actemra
syringe injections for two years. Diagnosed GCA from a biopsy in March 2022. Absolutely no side effects ever. I’m being taken off at the end of next month cold turkey. A little apprehensive (ie:scared) that a relapse may occur.
Ive been on the weekly
Actemra
syringe injections for two years. Diagnosed GCA from a biopsy in March 2022. Absolutely no side effects ever. I’m being taken off at the end of next month cold turkey. A little apprehensive (ie:scared) that a relapse may occur.
GCAYme
in
PMRGCAuk
18 days ago
Slight Cold and Actemra
I decided to skip my 6th
Actemra
dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s the day I take my
Actemra
. Do you all think I should skip it a second time or does it sound safe to go ahead and get back on schedule?
I decided to skip my 6th
Actemra
dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s the day I take my
Actemra
. Do you all think I should skip it a second time or does it sound safe to go ahead and get back on schedule?
Lenore58
in
PMRGCAuk
2 months ago
Actemra Anxiety
I just got a message from a pharmacy to get my approval for shipping
Actemra
. My doctor said I will be having one injection a week as a steroid sparing agent. I read about how it lowers your immunity further. I feel nervous. Any thoughts?
I just got a message from a pharmacy to get my approval for shipping
Actemra
. My doctor said I will be having one injection a week as a steroid sparing agent. I read about how it lowers your immunity further. I feel nervous. Any thoughts?
Lenore58
in
PMRGCAuk
5 months ago
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