I have been experiencing unilateral tinnitus on left ear for the last 7 months and at my audiology appointment, I learned I have high frequency loss (I did not know i had). I will have an MRI Wednesday but i think it is usual diagnostic methodology. I do not have any other symptoms like dizziness, vertigo, facial numbness etc. Do you know what is the chance of my having an AN? Have you read any paper given such a statistic?
Thanks.
Hi, sorry you’re having the worry and wait, the MRIs are the only way to rule out/diagnose an AN. They are almost always benign and extremely slow growing, and we learn to manage the symptoms without needing any treatment. If, and it’s a small if, you do have one, there is lots of advice and info, but seriously Google is not your friend when you don’t have the info on your specific circumstances. I had the same symptoms and do have an AN, I know of others who has the same symptoms and did not. I hope it’s soon resolved for you.
NO! It means that you MIGHT have an AN but you probably don't. The MRI will prove things one way or another. And by the way, just to correct the earlier post Acoustic Neuromas are ALWAYS benign!
Same happened to me left ear and they found tiny AN - I can’t stand the hissing in my left ear I just want it to go away - now I have this so doubt it will. Surgery is risky.
I still do not know what I have, but in my case, tinnitus seems manageable, it only bothers me at nights when I go bed. For that, I open a white noise source and I am able to sleep. So if I have a tiny AN, I will choose living with it compared to having a surgery. But if I have a big one and operation is inevitable, then there is no more choice.
They checked me mri because I had worse left ear and I have small AN I want it out but surgery risky abd T could persist
Statistics report around 1:100,000 in general population but should be taken with a pitch of salt as many may not be detected, but it is still rare. Stats do not help us individually moving forward the only thing that will inform you is the MRI scan, waiting makes for anxious times - if this is intolerable, then going private would be quickest option . Since I was diagnosed two years ago nothing has changed with my symptoms and there has been no impact on my life quality. With tinnitus I only notice this when I wake on some days although it is always there, I use distraction and do not worry about it, for me it’s a minor symptom, I know everyone is different esp in terms of size and location of AN which can affect symptoms. I hope you have an answer soon
Have you had the covid vaccine by any chance? I suddenly went deaf in left ear , suspected AN . But was nothing seen , told mini stroke at 55 yr young , had no other symptoms. now comes to light that vaccines are causing alot of issues with our pathways. not saying this is a cause. Just a thought and mention to docs so you dont have anymore reactions if it is the vaccine , of course no one will admit it as it's a trial x but tenfold numbers have increased in all studies... good luck and worst thing for me with tinnitus is noise. so I silent sleep x wipe everything from the mind, and get help to sleep if you cant naturally, cbd pills helped me 1st month x now I have a sleeping pill and diazepam to help me drift off ... good luck try not to worry x worst case is a good outlook. stay positive, I was in that place before my MRI. so be prepared to accept what ever they tell you , information is key , do your homework. So find a specialist hospital if you have to go down the surgery root ,dont trust local hospitals, if it's your brain you want to be best , good luck x
Surgery 1st April 2019
Waiting for results of MRI, Google has taught me so much compassion...
Acoustic neuroma 22x14mm and 5 mm cyst in the cerebellum.
Not sure what to do next
Referred for MRI - Suspected benign tumour 
