MRI wait and telephone consultation. Long wait is good?

[kinmd]

Hi everyone! I had my MRI on the 6th of September, as i’ve had tinnitus for i think a year now and after my hearing test i was told i had mild hearing loss in my left ear. Told it was protocol to have the MRI done to rule things out. I received a phone call from the clinic to book me in for a telephone appointment with the consultant to discuss the results. I guess i’m just thinking with the long wait everything is okay? Isn’t it like that for most cases? I know it sounds silly but i’m just guessing if there was something, they would’ve let me know much sooner?

Sorry my anxiety has just been really bad since that call last week.

[flappers]

Had my MRI on 26th Sept ( referred by GP for to tinnitus) and received a TC call on 28th Sept by my GP to tell me I had an AN. Between now and then had another MRI with contrast, apt with specialist team in Guys, agreed watch and wait until March to see how fast it's growing it's 15mm now) and due to be fitted for a hearing aid and tinnitus masker on 4th Dec. Basically I would say that no news since Sept is maybe good news? Hard to not worry, I know, but try not too read too much into it. Let us know how you get on and I'll let you know if the tinnitus masker and hearing aid helps... It's REALLY annoying, isn't it?!

[kinmd in reply to flappers]

Thanks so much for replying!! Yeah, it’s a bit hard. I actually thought i won’t hear about it anymore as i’ve had the MRI two months ago. But i guess it’ll be good news.

Yes, there are days when the ringing is so bad it’s really hard to sleep and concentrate at work. Hope all will be well for you too!!

[flappers in reply to kinmd]

Let me know how you get on. I do hope it isn't an acoustic neuroma but if it is, we will travel our journies ( virtually) together! When is your apt?

[flappers in reply to kinmd]

Just wondering if you've had your telephone consultation yet and results of your MRI. Hoping you have and it's not as much as a worry as you feared?

[DonnaDj]

Hello, I think my situation is kinda similar to yours ? Although you had your MRI a lot earlier then I did, its very difficult not to get anxious, I've had good days and bad days, on the good days I make sure I get out (walking my dog for longer periods) started listening to music again and watching movies when not at work, its helping! Although the waking up during the night is becoming a pain but I'm just riding the waves for the moment as I know the calm will come . Whatever the outcome being apart of this group should help a lot , its a nice feeling knowing we are not alone , plus its given me an interesting outlook on Aucustic neuroma its sure opened my eyes to a lot....healthy lifestyle and being kind to yourself seems to be the key , I wish you all the best luck and a positive diagnosis, please keep us updated x

[Debra1963]

Hi the wait for results can be so tough can't it. The main thing I found is to try and remain calm and positive. ANs are often slow growing and benign and watch and wait is the outcome for most of us for a few years at least. I had radiotherapy in 2017 and have had yearly MRIs since then. My last one in Sept showed that the radiotherapy hadn't worked and another scan will be needed in 6 months. Not gonna lie I cried but then got a grip and I know I can get through this. I have another health condition requiring an op over Christmas which my AN team at Addenbrooks has said to get recovered from that before we deal with Gavin (yes I have given my AN a name!) . I have a tel appt on 11 Jan to discuss where we go from here. I hope you hear soon but if you are worrying perhaps give the hosp a call. They really don't mind. Good luck and let us know how you get on xx

[Kristyll]

Old luck but whatever the outcome I am sure you will feel better knowing x

[Kristyll]

It’s hard not to worry but best to wait ans see what you are dealing with. I can’t say don’t worry but stress makes it worse xx