Operation posponed tumour has grown b... - Acoustic Neuroma ...

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Operation posponed tumour has grown by 50 per cent.

Teashop profile image
15 Replies

Disappointed again my op for 1;Oct has now been re schedule for 15 oct.l finding these cancellation quite distressing as one prepares ones self and do all again exhausting feeling quite depressed the tumour had 10 mm in 8 mths MRI scan showed shape has changed to .has anybody else had op cancelled twice.

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Teashop profile image
Teashop
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15 Replies
Lynsia profile image
Lynsia

Such a worrying time for you. Hope 15th will be confirmed and you have successful surgery and fast recovery.

Teashop profile image
Teashop in reply to Lynsia

Thanks x

SJa2020 profile image
SJa2020

Aww poor you. Hopefully it will be ok on 15th. In the current days guess these things are happening more. It doesn’t help the situation but maybe just taking it as when I’m meant to have it I will? But I know very tiring.

I’ve had a few appt. cancelled too & with just a few hours or a days notice.

Praying for you & hoping all will go well. TC

Teashop profile image
Teashop in reply to SJa2020

Thanks x

Tabbycat profile image
Tabbycat

Hi Teashop

So sorry to hear your operation has been cancelled for a second time - you must be feeling so p*ssed off! At least you have been given another date and not just left hanging ...

Stay strong

Tabby

Teashop profile image
Teashop in reply to Tabbycat

Thank you for your reply.l am trying to keep going .x

Pinklady111 profile image
Pinklady111

Really feel for you as i can imagine the tension and anxiety from it. I'm waiting for a surgery date and thinking it will probably get put back too. Hopefully all will go well for you on 15th

margielyn profile image
margielyn

I think we all can identify with you. My husband had an acoustic neuroma successfully operated on 7 years ago. It was scheduled and completed within a normal range of time. The stress was normal, but not overwhelming.

They discovered another benign brain tumor in another area (not an ANA) and he needed to have it removed in July 2019. Though my husband's surgery was not postponed as yours was, the date was so far out, that the waiting was almost unbearable! My husband took it well. but I became anxious just because of the waiting. So I certainly understand that you just want to get it overwith and I can sympathize with you! A brain operation is scary, but as my husband's doctor's staff told me, for a doctor with experience, it's basically routine. It really helped put it in perspective. The time passed and the operation was completed successfully. Try to busy yourself with things you like to do. I know we're in the middle of Covid-19 so there are restrictions. but order in food you love, learn something new on YouTube, catch up with friends you haven't spoken to for a while or start a new hobby! I wish you a successful operation and a speedy recovery!

Teashop profile image
Teashop

Thank you

SJa2020 profile image
SJa2020

Hi there how are you doing? I have an appt on 15th too that’s why remember you too. Hope you managed to do happy things you enjoy? Or just help you relax? I’m the opp. Trying to clean up little bits in the CNN house in my staggering 1/2 drunk way! Take care praying for you!

Teashop profile image
Teashop in reply to SJa2020

Thank for that yes walking is like you are drunk.l am struggling as worried they may cancel for third time .l am in isolated for 2 weeks due to covid so quite fed up.hopevyour app goes okn

SJa2020 profile image
SJa2020 in reply to Teashop

Thanks. Not expecting anything new as just ENT consultants but privately. I’m hoping they will give a mri appt just so I can reassure myself if I have an AN or not. If not I can then put it to my MS & speak to those consultants. It’s the sitting & not knowing CNN or thinking you have something different in you - that bugs me.

I do find my brain literally hurts now. To concentrate on things or where there is emotional pain. Is that something that is felt by anyone else?

TC all!

dcfcram profile image
dcfcram

What hospital are you having the op at ?, hope all goes well and wishing you a speedy recovery

Teashop profile image
Teashop in reply to dcfcram

The Walton centre Aintree

SJa2020 profile image
SJa2020

Morning Teashop - thinking & praying for you (for the appt. & op today).

Hope all goes well & take care! Regards Sarah J

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