Hello everyone,

[Stevie1888]

I was diagnosed with accoustic neuroma almost 3 yrs ago and have been awaiting treatment to remove it. Covid has delayed any further consultations or scans. I live in the North East of Scotland and have to travel to Aberdeen for any appointments. My AN is 23x17.5 mm I across 2 axis but I'm getting anxious now that nothing is being done. Can just wait and hope this happens soon. 👍

[redday64]

Hi hope you hear something soon , Good Luck , keep safe.

[SJa2020]

All the v. Best. The diagnosis is The 1st step So guess that’s one ticked off. If your symptoms are getting worse maybe just call & see what they say? I find with Covid they don’t look at even the basics! Understandable but not good for others.

TC

[Kristyll]

I would ring the hospital secretary to ask your queries or change hospitals. Iknow some Scottish people have been to Manchester folr treatment. Good luck xx

[Leodo]

Our experience is to chase everybody up at every occasion as soon as possible. To get things moving in the end is often down to the patient and their own tenacity. Are you experiencing any side effects? Do not let it grow large enough so that gamma knife is not an option. It may not be your choice in the end but you are entitled to the full range of choices. Make a nuisance of yourself and switch hospitals if necessary, hope this helps good luck.

[louise60693]

Me too, I the south east of England. No access to ENT even though they just refer you on. Good luck x

[Tabbycat]

Hello Stevie

I agree with the other posters - you sometimes have to be proactive. Here in England we were given a specialist nurse on diagnosis. I just leave her a message and she always returns my email or phone call and can help to sort things out. Or do you have the consultant's secretary number - give them a call and ask them what's happening.

Hope everything gets sorted soon,

Tabby

[Soxyboy]

When I was diagnosed,2018, my AN was 21 mm, and quite thin. I was lucky that it was picked up on an MRI

Since then I have had radiotherepy, and due for my post yearly scan.

I think, a lot depends on your local health board. You need to keep on to them. My consultants secretary forgot to send my notes to the local cancer hospitol, where I was due to recieve treatment and it was only because I thought that its was taking some time, that I bothered to chase up the appointment. My notes were still in her out tray!

Good luck.

I feel ok now, but should say that my symptoms were relatively mild.