One year scan.: I had Stereotactic... - Acoustic Neuroma ...

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One year scan.

JimBeckenham profile image
6 Replies

I had Stereotactic Radio Surgery at Guys one year ago, it was 15mm.I had the results of my one year scan today, it was a telephone appointment.The nurse said, there was a minimal increase, has anyone had a similar experience after a year?

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JimBeckenham profile image
JimBeckenham
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6 Replies
Bob36 profile image
Bob36

Yes, I did. Apparently they would expect swelling (in the 6-12 month scan) from the radiotherapy (so I was told). This gives the appearance of growth, but they can tell after 2 years whether this is settled and not growing any further. I was told on my 6 month and 12 month scan that it was slightly swollen. But at the 2 year scan I was told it had settled and wouldn’t need another scan for 2 years. Hope this reassures you, but do speak to your Dr. rather than the nurse for further info.

JimBeckenham profile image
JimBeckenham in reply toBob36

Thanks Bob,that’s reassuring

Jim

faysby profile image
faysby

I’m in a similar position but had SRS 3 months ago for a 12mm AN. I’m having increased dizziness, fuzzy head and balance issues which I’m assuming is due to the swelling. Have you had any issues over the last year? All the specialists assured me that most people had no symptoms at all which doesn’t seem to be the case from the online forums. Thanks, and sorry to answer your question with a question!

JimBeckenham profile image
JimBeckenham in reply tofaysby

Since my treatment a year ago,my tumor has flared up and I’ve had balance problems,and facial spasms,however things are more settled now.

Jim

faysby profile image
faysby in reply toJimBeckenham

Thanks Jim, that’s really good to hear. I don’t get a scan until 12 months and I’m not very good at being patient! Sounds as if you are making great progress.

Ballantyne56 profile image
Ballantyne56 in reply tofaysby

Hi, I have a 14mm tumour I am on watch and wait but I am having trouble explaining to the consultant that I really have a terrible fuzzy head and my Tinnitus in unbearable

Regards

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