When you keepisode going but need a bit of a '... - Tinnitus UK

Tinnitus UK

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When you keepisode going but need a bit of a 'virtual hug'.

Lindsay6 profile image
9 Replies

Hi folks. My audiologist has just cancelled my 11.30 appointment today and feeling bit list tbh. Determined not to give up but it's hard as I am struggling.I was also due to see the ENT secretary who was making good the wrong ( again) prescription from the locum Consultant. 😢

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Lindsay6 profile image
Lindsay6
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9 Replies
ade-the-pade profile image
ade-the-pade

Tomorrow is another day. Thanks to T I now have the temper of a disturbed rhino!! I no longer comprehend the meaning of the word "patience". I have ground me teeth to stumps and could pick a fight with the Dia lama.

Who says that it is easy to live with??

Ade

Angela-H profile image
Angela-H

Hi Lindsay, ENT departments in the nhs do appear to be poorly run, no doubt because of lack of consultants. It seems to be countrywide. I would suggest counting up the pennies and paying privately, as I had to when I was desperate. The consultant himself was of no comfort, telling me the usual ....... no cure etc etc. BUT, he did get me a very quick referral within one week to the nhs audiologist who, I tell you, was a lifesaver. She was virtually holding my hand as I went through the initial disbelief and actual pain, and I saw her every week until I was able to cope better. That is my suggestion anyway. I do hope that you are better this evening. Love and hugs, Angela xx

Lindsay6 profile image
Lindsay6

Thank you both , the rhino comment made me smile as this afternoon I got out to a garden centre for a coffee with a friend - and one of the cards we saw had a photo of a rhino lying on its back , all four legs in the air , with a funny sentance below to do with relaxing ( alas can't quite remember what ) but it did raise a smile. I managed my disappointment by contacting my local ( its not but the nearest I have found that is good ) group and had an hour long phone call with the amazing lady who set it up 30 years ago ( I have been in for 3 and a half years ) She really gets it as we say and has had really tough times and some easier ones. A great woman all round and I am really grateful to her ( part of me is angry it's ourselves / volunteers who have to help each other where statutory services fail , but I have got to know some great people because of this ). Tinnitus truly is infuriating and I have a ratty side too now ( only ever had towards Derby County Supporters before !) I am so annoyed with myself that I can be short at times , and that I can no longer work in the 'caring professions'. However , I will have to find faith in myself to turn things round. Best wishes to all the fantastic people on this forum xx

Keep chin up x I to laughed at the rhino not done that in a while x Hope yr feeling bit better this evening x

JohnJopp profile image
JohnJopp

I'm still trying to workout "Keepisode".

But have a virtual hug anyway :)

John

Lindsay6 profile image
Lindsay6 in reply to JohnJopp

Cheers ( not CheErskine as predictive text came up with - I took it off my last phone , and have NO idea where on earth it gets the words from such as Keepisode! )😊

retired66 profile image
retired66

HUGSXXXXXXXXX

retired66 profile image
retired66

HUGS xxxxxx

GDJTAM profile image
GDJTAM

It's let down's like this that exacerbates the T and just makes you feel rubbish, moody and angry with life.

Hope you get another appointment very soon.

Graham X

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