PCOS Documentary

[olubusayo]

Hi there !

My name is Olubusayo Asuni, I am a journalism student at the University of Kent. I am currently working on a documentary about PCOS for my final year project, i was diagonsed a few months ago and i felt it would be interesting and insightful for me to educate people about PCOS.

Would like to make a powerful impact by sharing your experience ?

Please message me

I look forward to hearing from you

Thanks

Olubusayo

[Smilithing]

Morning Olobusayo

Thank you for making your documentary. Although I have vaguely heard of pcos long before I actually found out I too had the condition, ten years ago. All these years later, it still seems pretty vague. I find it tiresome and awkward trying to explain what is wrong with me.

I would greatly welcome more awareness.

I fear others think I am just getting on the band wagon when I explain why I am not eating normal food.

There was talk of changing the name of polycystic overy syndrome because it focuses on "women's problems" and bits. Rather than an endocrine disorder.

I have never wanted children, I don't need to have periods.

So if it was just about reproduction and problems with conceiving, why does it bother me?

Pcos is a mine field. I find it difficult to know the best things to do.

I can't say I am depressed but I do get down and over whelmed.

I want to thank verity for helping to get pcos out there and everyone else who puts time in to unravel pcos.

I am a tomboy, not overly girly

And parents always reminded me that we are just animals, so I guess this is why hairs in boy places didn't initially stress me out!

I know now I wouldn't have a beard or be overly hairy if It wasn't for pcos. I can't stop it or make it go away, that does stress me out!

A friend once asked me if i had a bruise on my chin!

I once found a really long hair ingrown in my chin, it made me feel sick.

Then there is the problem with weight. I feel I can't eat anything without getting fat.

I really really enjoy my food.

I have to cut my portion sizes!

All drinks have sugar in them apart from water in pubs, I like a coffee or tea and they turn off the coffee machine!

Cos it's not cool to be seen drinking coffee at 11 in a pub, and my friends laugh at me, to be fair most of them are men and you know what they can be like. Well I am so sorry but pcos isn't cool!

And I am fed up with explaining to everyone. But they don't really get it, spos cos they can't see it!

Makes me feel like I'm being awkward!

Just another nutcase following other fad!

Like another lady with pcos said, "it's like fighting a war"

Trouble is it's in secret. You can't get off your tank but nobody can see that tank!

I have forgotten about my condition but now I have put on 2 stone, again.

While my friend eat and drink what ever they like and all are slim! Makes socialising hurtful.

It takes an awful lot of time and energy to fight this war and it is tough on your own.

I think more awareness would make the load a lot more easier to carry.

Thank you again.

[olubusayo in reply to Smilithing]

Hey, thanks so much for your reply, honestly i can completely relate to what to you are saying - as someone who has been diagnosed too - , pcos is very difficult to understand, please would you like to talk about your experience /how you feel on my documentary. this would be really amazing.

Thanks

[Smilithing in reply to olubusayo]

Hiya Olobusayo

Just wondering what you would like from me.

Not sure I talk in front of a camera. I don't think I would be very professional.

But I agree there needs to be a lot more conversation in the media.

What did you have in mind?

Look forward to hearing from you.

[olubusayo in reply to Smilithing]

Hi,

Sorry about my late reply, just seeing this but I am working on a video documentary and I am looking for someone that would like to be interviewed, it might be a little bit intense, I might be following the person around - if you have any doctors appointment or anything like that - its basically me documenting a month or so of a person living with PCOS. Would be okay with that ?

[abs-1234]

Love this! It took me so long to come to terms and manage my PCOS and I found it hard to find information on the internet without people selling something in return. My biggest thing is the lack of knowledge the healthcare professionals have. The word ‘PCOS’ seems to been thrown about willy nilly but it affects and takes over so many of our lives. I am happy to share my story if you need it.

[Hidden in reply to abs-1234]

This. I once found what I thought was a good support group on facebook only, when I asked a question to the community, the organization wanted to give me a "consultation call." And bill me, of course.

[PaigeAntoinette94]

Hi Olubusayo,

I am looking forward to seeing your documentary, awareness is a must.

PCOS has impacted my life greatly, at the moment I feel like PCOS is controlling my life. You feel like you are fighting a losing battle and you never know when the battle will end. Thankfully this year, I have been given fertility treatment in order to start a family. This is the beginning and I do not know how long this will go on for but I am feeling hopeful.

We need more awareness as for many years I have thought I was alone

[olubusayo in reply to PaigeAntoinette94]

Thanks a lot !

Please do you know anyone with PCOS that would be willing to be part of this video documentary ?

[PaigeAntoinette94 in reply to olubusayo]

Yes I have PCOS

[PottyDolly]

I'm a mother of a young woman who not only has pcos and has been given scant attention /information by healthcare professionals but also has dispraxia. As with pcos you need to be organised in looking after yourself, having dispraxia means she can't be. She is fighting both conditions and wishing deeply she had neither. There is info out there but right now she feels the future is bleak. Any support welcomed.

[olubusayo in reply to PottyDolly]

Hi PottyDolly,

Sorry about my late reply, just seeing this but I am working on a video documentary and I am looking for someone that would like to be interviewed, it might be a little bit intense, I might be following the person around - if you have any doctors appointment or anything like that - its basically me documenting a month or so of a person living with PCOS, Would this be okay with you ?

[Bluelady-sing]

sure what do you want to know

[Bluelady-sing]

I can tell you I think about PCOS every day.

[introuble]

recently diagnosed with PCOS, can PCOS cause you pain everyday?

im confused