My 18 year old daughter had a scan last month and was told by radiographer she has PCOS (apparently really evident from scan alone). She has appointment with endocrinologist later this month.
I feel terrible as she has been complaining for years of 'tummy aches' and in the last 5 years has changed so much. Her weight ballooned, her hair thinned while she had black coarse hair on arms, back, chest and face. I can't believe how useless I have been with her symptoms! When she told me her hair was falling out I told her 'everyone loses hair'. At 14 she was a slim teenager and now she has a large belly. I don't know about her periods - she wouldn't tell me. To top it all, she has a cousin with PCOS and 3 close female relatives with endometriosis and I made no connection.
I only started taking notice and persisting with the doctor when I suddenly realised that none of the symptoms were due to her, things weren't normal and she was so fed up she finally agreed to speak to a doctor. Previously she had put a brave face on everything and basically her attitude was, if you don't like how I look that is your problem - I am ok with it. When I offered to try and fund laser treatment for her arms she got annoyed at me and said that she had finally accepted it (after 4 years) and so should I. She has deferred university for year and I think PCOS is the reason.
Since diagnosis last month she has gone on a low carb diet, lost a stone and is planning her exercise schedule. I know she is scared of the implications but am so proud of her for trying to do what she can to help herself. I only hope I can be as strong with the consultant rather than I have been with the GPs over the last few years when we have gone in for various aches and pains but never addressed the real issue.
I just wanted to say how glad I am that I found this site as I now have some idea of what to expect - including from doctors and varying treatments. Thank you for all the information.
My daughter has amazed me with her emotional resilience so far and I hope it lasts. I know it has had a deep affect on her but I hope it won't change who she is and that she gets her confidence back. She is amazing. I know her symptoms aren't as bad as could be and I hope that lasts.
My heart goes out to everyone on this site, but particularly the teens. It is heartbreaking to read their posts and see their despair. I applaud those who have suffered for a while and it is wonderful that they encourage and advise the younger ones. It is great to see everyone sticking together.
You are all brave and beautiful and I hope you don't mind my joining for advice and updates. I have suffered from clinical depression and the only contribution I can make is to say that sharing your problems and sadness can sometimes help.
Hoping for breakthroughs and willing to do all I can to help.