HI, this is to any Giant Cell sufferers out there.
Quick background. Had eye pain and black blobs in left eye along with temple pain and jaw pain which was worse when I ate along with what I can only describe as a pressure to one side of my face. Blood test pointed to vasculitis, put on Pred and had a biopsy which was normal. Then told had Tak. Now told not Tak so back to GCA but question mark over it as i'm 45. When they reduced pred all my symptoms came back, On Toparimate as they thought maybe silent migianes, but it has made no difference.
At the moment the pain to my temple and eyes it terrible. My temples are swollen and tender and i am constantly dizzy. My jaw is painful when I chew in the joint area down. I have blurred vision with double vision and when I try to correct it it hurts my eyes, I also get ice pick headaches. I keep mentioning all this but as they thought it was Tak and to young for GCA they just dismissed it.
My question is what are your symptoms and what is your treatment plan. Is it more than pred. Do the symptoms fit. Just seem to be going round in circles. One last thing does it affect lungs, just found out I have a lesion of 5mm in righ lung.