This is post from the Vasculitis Uk face boo... - Vasculitis UK

Vasculitis UK

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This is post from the Vasculitis Uk face book group from a young lady called Charley, it sends such a positive message.

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John_MillsVolunteer
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Charley has Wegeners Granulomatosis. She had a rare severe reaction to Rituximab. Charley is now taking methotrexate as a maintenance medication.

"Well I found out after waiting a year that I can drive again!! Rituximab gave me seizures and the DVLA have finally said its ok! I have a job as a sailing instructor starting next week. I also have been in 5 sailing races over the last few weeks with 3wins and 2 seconds.(including beating a 2012 Olympic sailor) So it appears wegeners can be beat!!!! =D xxx"

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milliewin

Charley, I dont know much about Wegeners Granulomatosis as I have Cerebral Vasculitis but do share the loss of my driving licence for a year and well done to you for getting it back and your amazing new job and sailing ability, and yes well done for beating Wegeners Granulomatosis, you seem so positive and its great to read some good news for a change!!

Best wishes Sarah

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