I am having a flare up of hypersensitivity vasculitis at present, following a reduction in hydroxychloriquine sulphate (I also have SLE, Sjogren's, coeliac and migraine). I've increased my dosage back up and the rheumatologists have said it may take up to 6 weeks to take effect, and until then I need to sit tight. If it doesn't clear after that then I'm back on Prednisilone.
They're checking my bloods to ensure I'm not also having a lupus flare.
What I find odd is that when my skin is flaring like this, I get really quite large lumps on my scalp and around my hairline. They are painful, sometimes mildly itchy. They're perhaps the size of grapes, and I can have maybe a dozen or so at a time, worse at night. Does anyone else experience this, and do you have any tips for reducing the discomfort? Putting my head on my pillow, brushing my hair etc isn't pleasant!
I'd really love to hear everyone else's experience and coping mechanisms.
Other symptoms in addition to the typical skin rash I get are;
Painful swollen areas, especially in my hands and fingers and feet
Pain in areas where I've used my muscles or a bruising feeling
Double vision (intermittent, bilateral vertical - this may be lupus - GP considering a neurology referral)