Are you interested in taking part in the “HAVEN” Trial?

[Suzi70]

Have you been diagnosed with GPA, MPA, EGPA ?

[citygirl1234]

I participated in this trial and would recommend it to anyone thinking about it. Being in the trial also didn’t impact my treatment - I was still able to start azathioprine when my body rejected methotrexate part way through the trial.

We need more treatment options for ANCA vasculitis and hydroxychloroquine could be a useful addition. Hydroxychloroquine has been around for a while so the side effects are well known and the positives outweigh the risks for most people. It also works well for some people with SLE / lupus, so it’s worth investigating. The research team is looking at the standard measures (BVAS scores, bloods etc) and quality of life factors. I hope they can find enough people to participate to make the research meaningful.

[Riff1954]

Would have been interested as pred is causing my wife (who has EGPA) issues with her bones. Unfortunately, having checked the criteria, she is ineligible due to taking a biological treatment other than Rituximab and also has immunoglobulin infusions. I hope the trial attracts sufficient participants to enable a proper assessment to be made and thank you for drawing our attention to it

[Red-head44]

GPA