Eyes and ears: Hello Does anyone on here, get... - Vasculitis UK

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Eyes and ears

Ianflashdavies profile image
8 Replies

Hello

Does anyone on here, get severe pain around their eye socket, and around the base of the ear, where your ear canal goes into the skull.

I usually have it before a silent migraine.

Thank you

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Ianflashdavies profile image
Ianflashdavies
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8 Replies
oiseau222 profile image
oiseau222

I have that pain most of the time. My ophthalmologist instst that it is dry eyes (for which I am treated), but it feels closer to how uveitis feels. Restasis, tests, heat packs, ice, antihistamine drops don't make my eyes feel any better. feel better. I hope your improve.

AndrewT profile image
AndrewT

Dear Lanflashdavies,

I think this might 'Just' be your Migraine Warning- a friend of mine, from some years ago- used to Suddenly Wet' herself.... anywhere from three minutes, to half a hour, prior to a Seizure. It might be Worth speaking to the E(ar), N(ose) & M(outh) Team though.... Covid nothwithstanding.

I hope that you 'Get Better' soon though, my friend.

AndrewT

AmyS1 profile image
AmyS1

Many types of vasculitis affect the ears and eyes, eg GPA, relapsing polychondritis etc. Do look at the website and call the helpline for more information.

Maduza profile image
Maduza in reply to AmyS1

What is vasculitis please us it part of the UC and Chrones diseases

Webbyj profile image
Webbyj

Yes I get that sometimes usually lasts a few days

Varp profile image
Varp

Hi, I have relapsing polychondritis and primary sjogrens syndrome and experience both you have described at different pain levels and can come on at anytime. I use heated eye mask daily. Hope you find something to ease your discomfort.My daughter experiences severe migraine and one of her warnings is 'screwdriver in the eye' as she describes it about 30 mins before the eye glare and flashes and numbness in her arms.

Maduza profile image
Maduza

I currently have just thst after being put on vedolizumab a year ago. Do you take this drug do you have UC or Chrones

Ianflashdavies profile image
Ianflashdavies in reply to Maduza

No, not that drug. No I don’t have those ailments either.

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