I have GPA which was diagnosed in 2014 unfortunately I relapsed in May 2016 was put on 40 mg of pred which I have been reducing also had 3 treatments of Retuximab next one due in July
I am now down to 6.5 mg of pred and trying the dead slow almost stop method by 1mg over 7 weeks but still experiencing withdrawal symptoms ie aching arms/ legs is this normal ?
Not sure if the .5 mg a month is a better method
What are your thoughts? Any advice is most helpful