When there is throat or ear involvement with MPA, what is that like? I have pain in both but not like flu.

[PattyMPA]

MPA with throat or ear pain.

[John_Mills Volunteer]

Is this a new symptom or a reoccurring problem PattyMPA?

[PattyMPA in reply to John_Mills]

The ear and throat/eustachian tube pain and congestion is new for about 10 days. I have had sinus problems, rhinitis, all my life. I have IgA deficiency which may explain that. Eisinophils are fine but 30 years ago it was Eosinophilic non allergic Rhinitis. Maybe I have GPA nit MPA? I am P ANCA MPO diagnosed as MPA and had high CRP and ESR plus a lit else wrong...chronic lung and pleurisy problems (just cleared up) and undetermined nodule in lung they cannot biopsy I see Pulmonologist and Rheumatologist Monday. On 15 mg Pred + 12.5 Methotrexate 1x a wk. Maybe not aggressive enough. We go to Kauai Friday and I so badly want to act normal and play in the sea.

[John_Mills Volunteer in reply to PattyMPA]

Mild ENT problems are consistent with MPA but if severe, you might be right about it being GPA. Although pANCA does usually indicate MPA, not GPA, there can be occasional crossovers. Have a great and enjoyable holiday in Hawaii

[metalback]

I've got MPA too. No problem with ears get sore throats put down to acid reflux. If it's something new let your consultant know and get it checked out.

[PattyMPA in reply to metalback]

Found out it is reflux, maybe from the Methotrexate?

[Canygirl61]

I’ve not yet gotten a diagnosis, as I’ve been told by my doctors, my case is “complicated.” That being said, there’s suspicion of vasculitis, specifically CNSV. I suffer from headaches (not debilitating), transient spots of head (sore to the touch temples) and facial pain— kinda like a numbing pressure. I get intermittent ear pain, with constant tinnitus— ringing, with one-sided clicking. A few months ago, my throat would be sore for a week, then pass, only to reappear. The pain felt like a squeezing tightness. Not sure what I’m dealing with, but thought I’d share.

All the best.

[PattyMPA]

It turns out it us reflux frim my MTX.