Berkshire.: Hi all, I'm keen to get in contact... - Vasculitis UK

Vasculitis UK

7,759 members6,736 posts

Berkshire.

HFox profile image
HFox
6 Replies

Hi all, I'm keen to get in contact with other people in the local area, I live in Bracknell, Berkshire I just wondered if anyone else was near me that might want to have a chat and share experiences? Hanna x

Written by
HFox profile image
HFox
To view profiles and participate in discussions please or .
6 Replies
Sima1952 profile image
Sima1952

Hi Hanna, hopefully someone in your surrounding area will make contact with you. Having said that ,this website/chat page is extremely helpful and you'll get a lot of help/advice/suggestions on here. I live on the Herts and Essex border and l don't know of anyone in this area who has Vasculitis, after all we're a pretty rare bunch and seem to be well spread out. :-)

Sally

Merca profile image
Merca

I am not on here that often, but I am near Newbury!

MiaTilehurst profile image
MiaTilehurst

I live in West Berkshire and would like to share experiences. What type of Vasculitis do you have and where are you treated?

HFox profile image
HFox

I've recently been diagnosed, the consultant hasn't confirmed what type but given the symptoms it's pretty certain it's WG. I'm being treated at Royal Berks, how about you?

MiaTilehurst profile image
MiaTilehurst in reply to HFox

I have CNSV and am treated at the RBH as well. I was diagnosed in 2005 so have travelled along this road for some years now. I'll try and private message you if I can remember how to do it. That's the problem with CNS Vasculitis - some days my memory is better than others!

MiaTilehurst profile image
MiaTilehurst in reply to HFox

I sent you a private message. Let me know if you get it, I can then send you contact details.

You may also like...

How does one contact the community administrator of PMR

I have been blocked by PMR community for no reason . I would like to contact Candy. How do I do that

Has anyone taking cyclophosphamide suffered from tinnitus as a result?

it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?

Covid Vaccine - Anyone Booked In - And how

I don’t seem to be able to book it online, and I have no faith whatsoever in my GP practice. Nick.

COMING OFF PREDNISOLONE

Hi All, I was diagnosed with vasculitis just over a year ago. I reduced pred very quickly down to...

Vasculitis and rheumatoid arthritis

vasculitis related. Would love to hear other people's views or experiences about this.