Help please- anyone here from Australia.

I am trying to find a Rheumatologist who has an interest in/ specialises in Vasculitis. Have not had much success searching here in Melbourne. Thank you. Saties

[Albasain]

Hi Satie,

I've done some research and found Dr John Moi, consultant rheumatologist at the Royal Melbourne hospital.

You can also contact Wally Dort who runs the vasculitis support group in your area. His email address is: [e-mail]

He should be able to advise you too.

It appears that the Royal Melbourne hospital rheumatology team are quite good in regards vasculitis treatment.

St Vincents hospital also has a vasculitis dept. but I think that they are mostly private

Dave Newman

The London Vasculitis Support Group

[Hidden in reply to Albasain]

Dear Dave, thank you so much for the research and information. King regards Satie.

[Macedon]

Hi Saties. I live near Melbourne (Macedon) and have been going to the Royal Melbourne for the past 9 years for treatment for my Vascular disease (I have Microscopic Polyangiitis). The Rheumy that I saw some time ago was David Barraclough. He has a very good reputation and is part of the Rheumatology Dept at Royal Melbourne. He was recommended to me by the Mayo Clinic in the USA. You could contact the dept on [phone].

Good luck! Nick

[Hidden in reply to Macedon]

Dear Nick,

Thanks for the information much appreciated. I live in Woodend. Small world!

Kind regards

Satie

[Nancyp]

Hi Satie,

I am in Melbourne too.

Just recently consult 3 rheumatologist,they seem to worry about joint pain that I never have. I had blood test shows PR3 ANCA high and it suggestive to WG. It is difficult to find help and I understand too well ...your worry. I had just had result last month and still none of the rheumatologists I saw wanted to give any treatment. They siad have to wait til symptom shows!

[Hidden]

Hi Nancy, my apologies for the delayed reply . Thanks for sharing. Yes,I like you are learning that it does seem to take time to find a specialist that will really listen to us and take note of symptoms that we experience and not simply rely on more common diagnostic criteria as the only yard stick to establish a diagnosis. I have experienced a variety of signs and symptoms over years but more acutely in the past 6 months. Have been searching for a Rheumatologist I can trust and who actually listens to me when I describe my signs and symptoms. Anyway seeing someone new next week. Diagnosis not clear but probably Central Nervous System Vasculitis secondary to an underlying system Vasculitis (? Type). The Neurologist I have seen is finally helping in reaching a diagnosis which will hopefully lead to the appropriate treatment. But do find a specialist that you are comfortable with. Happy to chat via a private message if you wish to discuss specialists.