Vasculitus or vasculophy

[Louzoejf29]

Does anybody know what the difference is between cerebral vasculitus and cerebral vasculopathy?

[PMRpro]

Vasculitis is inflammation of the blood vessels. Vasculopathy covers all disorders of blood vessels. So vasculitis is a vasculopathy but there are others with different causes.

[annie330]

Interesting to see you ask this. I was told I had vasculitis and sle and anti phospholipid and treated by rheumatologist for these. They then decided I should a neurologist and he says I have vasculopathy. To be honest I'm brassed off a bit with the neurologist as he wants to stop some of the treatments that as far as I can see have made me feel better than I was before the rheumys saw me, so for me I prefer them to be my first port of call but I know see both and I guess time will tell. And every medication he has recommend for me has made me worse and had to be stopped and moved back to what the rheumy had me on!

The reply from PMRpro is my understanding of the two things two. If you don't mind me asking can I ask why you have put this question on.

[Louzoejf29 in reply to annie330]

Thanks for your replies. I ask the question because I am under neurologist for last 15 years originally was told was having Tia and strokes, then angiopathy the last few years vasculophy, and then eighteen months ago also diagnosed with pmr, I am on ten mil daily steroids for pmr and having cycophosimite just on third cycle, had six then four but four only lasted two months now having a further six, specialist has applied for funding for retuximab will have to wait and see.

For the vasculophy neurologist has said he wants me to see a rumitologist. When I get symptoms of vasculitus I also seem to have problems with pmr.

[AndrewT]

Dear Louzoejf29,

Without meaning to sound condescending in any way- you poor, poor sod! 'They' really are giving you the 'run around', for sure. I'm not really qualified, to answer the specific medical matters that you raise. However I can/will repeat, to you, some general points- that I made to a good friend of mine recently.

You need to get someone maybe your GP, or hospital doctor/consultant, even you local pharmacist, to act as a co-ordinator, for you. In other words someone who will act as an 'anchor point' for you. This person, and your own GP would be a good person to use, would correlate ALL your treatments. With one good person , acting in this way, the 'anomalies'- drugs not working, being changed left right and centre, and the general confusion caused to you should be stooped or, at least, severely reduced. You, like my friend, need some space/rest, from being pulled in every direction imaginable and then some! You need to catch your breath, so to speak.

Please do try this and would you please, be kind enough, to let me, indeed us all, know how you get on?

In the men time I send you my prayers, and best wishes.

AndrewT