Does anyone have a surging feeling running t... - Vasculitis UK

Vasculitis UK

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Does anyone have a surging feeling running through the body,it can last for a couple of hours or longer and cause you to feel very ill.

yorkshiregirl44 profile image
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yorkshiregirl44
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Linmur1957 profile image
Linmur1957

Yes I wake up in the early hours with this surge. It is very frightening. I don't know what it is, I get this if I am having a flare. It takes a while but I try to get back to sleep and wait till morning. Usually it has passed. Very scared and my blood pressure is usually sky high and I need to take my inhaler. Legs are on fire and feel as if toes are going to explode. Sorry I'm really not much help as to why this happens.

yorkshiregirl44 profile image
yorkshiregirl44 in reply to Linmur1957

No.. you really are of help. Iv got a thyroid diagnosis but i know something else is going on. Like you said when its happening you cant rest or sleep properly...i feel like my insides have gone very hard and that my organs are shutting down.

Its not like flue or a virus symtom but something very profound, i know exactly when it starts and know the minute it stops.Can i ask you if you have a vasculitis diagnosis.

Linmur1957 profile image
Linmur1957 in reply to yorkshiregirl44

I have had a positive p-anca result. Went for another last week after 3 months and not done due to technical issues. Ringing doctor and consultant tomorrow to find out what is going on. My thyroid was borderline but is now satisfactory. Asked for figures but was told they did not have that only satisfactory.

yorkshiregirl44 profile image
yorkshiregirl44 in reply to Linmur1957

Is p-anaca like the antobody test. Do you think its vasculitis with your symptoms. I just need to get to the bottom of it because i feel so ill with whatever is casuing these flare ups.

Linmur1957 profile image
Linmur1957 in reply to yorkshiregirl44

Yes I think I have vasculitis.