Nalcrom: Hi all, I hope everyone is... - The UK Mastocytos...

The UK Mastocytosis Support Group

593 members252 posts

Nalcrom

TTBluebells profile image
5 Replies

Hi all, I hope everyone is coping ok with the heat!

Feel as though this is unfortunately becoming a reoccurring issue but does anyone happen to know of any pharmacies that has Nalcrom in stock please ? I’m about to run out in the next few days and the pharmacies I’ve tried have said mid august for a restock, have been trying to get hold of more for ages=[

Thank you

Written by
TTBluebells profile image
TTBluebells
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Jess-UKMasto profile image
Jess-UKMastoPartner

Hi TT, when I met with the Sanofi rep last week I was told that the restock would start this week, but that sounds ominous. I've already emailed him today to ask for an update but have not heard back. Meanwhile, there is the possibility that you could ask your doctor for a prescription for the liquid ampoules now licensed for use in the UK from Brown & Burk and distributed by Rosemont Pharmaceuticals. It's extraordinarily frustrating.

TTBluebells profile image
TTBluebells in reply toJess-UKMasto

Thanks Jess! Are these available on the NHS or just privately ?

Jess-UKMasto profile image
Jess-UKMastoPartner

In theory any doctor could prescribe it, but the NHS doctor may or may not be willing to based on the price (which is higher). I think it's worth a try.

TTBluebells profile image
TTBluebells

Thank you Jess will give it a go!

MadRed13 profile image
MadRed13

I have been without my Nalcrom for a month now and pharmacy still saying they cannot get it. I am owed a box from Guy's pharmacy too and nothing from them either. I will have to email Dr Radia to see if she will prescribe the liquid ones for me. It is all horribly frustrating.

Not what you're looking for?

You may also like...

Nalcrom Supply Update

Nalcrom update: Sanofi (maker of licensed Nalcrom) are estimating that their product will return...
Jess-UKMasto profile image
Partner

Anyone had Omeprazole cause Myositis?

Hi, I've had a diagnosis of MCAS, but I had an argument with my rheumatologist because I don't...
Chancery profile image

MRI with contrast dye

I need some advice / opinions, please. I have to have a MRI scan of my brain, to help diagnose...
Topnumpty profile image

Might I have Mastocytosis rather than MCAS?

Hi, I experienced a very strange phenomenon last night that I've never had before and it's made me...
Chancery profile image

Could MCAS a possibility?

Hello everyone, I have been wondering for a while if I could have MACS. Last year I was...

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.