Nalcrom: Hi all, I hope everyone is... - The UK Mastocytos...

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Nalcrom

TTBluebells profile image
5 Replies

Hi all, I hope everyone is coping ok with the heat!

Feel as though this is unfortunately becoming a reoccurring issue but does anyone happen to know of any pharmacies that has Nalcrom in stock please ? I’m about to run out in the next few days and the pharmacies I’ve tried have said mid august for a restock, have been trying to get hold of more for ages=[

Thank you

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TTBluebells profile image
TTBluebells
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5 Replies
Jess-UKMasto profile image
Jess-UKMastoPartner

Hi TT, when I met with the Sanofi rep last week I was told that the restock would start this week, but that sounds ominous. I've already emailed him today to ask for an update but have not heard back. Meanwhile, there is the possibility that you could ask your doctor for a prescription for the liquid ampoules now licensed for use in the UK from Brown & Burk and distributed by Rosemont Pharmaceuticals. It's extraordinarily frustrating.

TTBluebells profile image
TTBluebells in reply toJess-UKMasto

Thanks Jess! Are these available on the NHS or just privately ?

Jess-UKMasto profile image
Jess-UKMastoPartner

In theory any doctor could prescribe it, but the NHS doctor may or may not be willing to based on the price (which is higher). I think it's worth a try.

TTBluebells profile image
TTBluebells

Thank you Jess will give it a go!

MadRed13 profile image
MadRed13

I have been without my Nalcrom for a month now and pharmacy still saying they cannot get it. I am owed a box from Guy's pharmacy too and nothing from them either. I will have to email Dr Radia to see if she will prescribe the liquid ones for me. It is all horribly frustrating.

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