painkillers / Pain Relief

[amadamico]

Having issues getting the doctors to prescribe painkillers for a sore back. Apparently if you have Mastocytosis you can’t have morphine, codeine, NSAIDS etc Stuck with paracetamol and lidocaine anaesthetic patches.

What does everyone else get?

[Merma]

Sorry, I’ve been in this boat for years. My drugs of choice: a combo of ice, heat, KT tape, massage, rest, hot tub jets - also mindfulness meditation. I know it’s a bummer,

Sometimes, the drs will take pity on me and let me have a couple of days of prednisone.

Best wishes to you.

[amadamico in reply to Merma]

Oh god really? I thought it was just my docs taking their time. Maybe there is no pain relief available for us 😢. Thanks for your reply.

[bookish]

Just wondered if you'd definitely injured the back or if it could be a systemic symptom? Low back pain is commonly a low cellular vit B12 symptom, for example, and can also be low vit D. No doubt there are others. Are you using magnesium? I find the oil spray very helpful for pain.

[amadamico in reply to bookish]

Oh now theres a thought, thanks, I never thought about that. I just presumed I hurt my back. Not using magnesium but will definitely look into that. Thank you.

[MastoMan]

I stopped NSAIDs after being diagnosed with Mastocytosis years ago. I suffered from sciatica this year; I was prescribed co-codamol and wanted it because the pain was so bad. I managed to tolerate co-codamol for months, then went into anaphylaxis multiple times within a short time frame. It was, I think, a combination of the co-codamol and stress that cause the anaphylaxis.

I found hot and cold packs can help. Also, TENS machines were helpful.

[amadamico in reply to MastoMan]

Thanks for that information. I was tempted, against doctors orders, to take cocodamol but that has given me the fear. Thanks for sharing your experience.

[MastoMan in reply to amadamico]

Everyone is different, but based on my experience, I would have to be in a similar amount of pain again to risk taking co-codamol.

[Blanketttime1]

i take the opiate, but i also take as little as possible and my h2 when i take it. i learnt the hard way that nsaids are a major absolutely not! i miss them. they were actually my favourite medication because i have double avascular necrosis in my hips from steroids. and they worked so well.