Stopping prednisone

[Hawk12]

Does anyone have experience with stopping prednisone? I am 3 years post transplant and am taking 5 mg per day. The Transplant Nephrologist says that I can just stop it. I thought that it had to be tapered, even at that low dose?

Thanks!

[opie]

I’m on 5mg and have been told I need a blood test to check I’m still producing steroids naturally and if I am it can be tapered down slowly with lots of blood tests. Suddenly stopping can cause shock and serious problems (so I’ve been told)

[Hawk12 in reply to opie]

Thank you opie! That was my understanding. I have been seeing an Endocrinologist (I have hyperaldosteronism, which probably contributed to my renal failure) and I will message him.

[HSP1965]

Hoi, Ik gebruik nu bijna 5 jaar 5 mg prednison en wil er ook heel graag mee stoppen.

In plaats van prednison moet ik dan overstappen op cellcept.

Komende maand ga ik hiermee beginnen met een afbouwschema en steeds controles dmv bloedwaarden prikken.

Zie daar best tegenop steeds weer medicatie-curves laten prikken in het ziekenhuis vandaar dat ik het steeds uitstel.

Spannend maar ik wil heel graag van de prednison af.

Benieuwd wat jij gaat doen.

Succes

Josette

[Hawk12 in reply to HSP1965]

Thank you Josette! I am still gathering information.

[HSP1965 in reply to Hawk12]

Heel veel succes 🙏🏻

[Darlenia in reply to HSP1965]

Goededag! I find it interesting that as your team weans you off of prednisone that they're going to replace it with cellcept. I trust the process goes well for you!

[HSP1965 in reply to Darlenia]

Ik woon in Nederland misschien is het hier anders maar zou graag je reactie horen waarom geen cellcept en wat anders?

Ik gebruik 8:00: 5 mg prednison, 1,5 mg prograft en 20: 00: 1,5 mg prograft

[Darlenia in reply to HSP1965]

Hallo! I noticed your reply was in the Nederlandse tal; my parents and brothers immigrated from your country to the US following WWII. My husband has a transplant. He takes Envarsus (a timed released form of prograft) 5 mgs morning. Prednisone 5 mgs morning, and Myfortic (cellcept) 2 grams in the morning and evening.

It's important to add that my husband received a kidney that was an "average" match. He also agreed to accept a less-than-perfect kidney from a deceased donor with medical issues. Since my husband was 71 at the time, he's aware that his lifespan is limited. My husband is now 74 and his kidney is functioning very well and he feels great. Hence, no one is interested in changing the situation, even though prednisone was likely the major factor that made his diabetes return. Wishing you veel succes with your upcoming adjustments.

[Hawk12 in reply to Darlenia]

Thank you Darlenia! 😊

[HSP1965 in reply to Darlenia]

Dank voor je verhaal!Fijn dat het goed gaat met je man.

In het begin heb ik ook cellcept gehad maar kreeg daar gordelroos van!

Nu trombose met levenslang bloedverdunners.

Het blijft lastig maar als ik het niet probeer weet ik het niet.

Ik wens jou en je man veel gezondheid en geluk.

Groet, Josette

[Darlenia in reply to HSP1965]

My husband, too, got shingles from his transplant meds. His eye is permanently affected - glaucoma. He is now on eyedrops forever. It's a challenge, for sure. We just keep on keeping on - het is zoals het is. Wishing you much health and happiness as well!

[HSP1965]

Goed zo.....heb ik ook gedaan!