Referred back to TS clinic

[JessAH]

I have for the last 9 months been in and out of hospital for symptoms such as 13kg weight loss, unbearable tiredness, severe joint pain, muscle pain, legs giving way, vision problems, sensitivity to light and sound. I have had to leave my last year of uni due to all these symptoms and am limited on what I can do in my life due to all the symptoms. I was last seen by a rheumatologist who said I should see a neurologist. Therefore I have been referred back to my TS neurologist ( I was diagnosed 4 years ago at aged 19). I was just wondering if anyone out there with TS experiences these issues too? I have been trying to do research into it and as yet have not found much. My TS recently has been getting worse, mist likely due to my levels of tiredness and fluctuating hormones, but prior to the last 2 months my tics had been barely there (now they are getting pretty bad again- which is great to add on when you have bad joint pain!)

thank you for any advice!

x

[JessAH]

just to add as well, I get continuos pins and needles and burning in hands and feet as well as frequent dizziness with pain down arms and burning in face.

[Linners31]

Hi your symptoms sound awful hun and not something I've experienced. TS runs right through my family at least 4 generations but I'm not aware of those symptoms. It is possible that there is something else going on here too so I'm glad they have referred you and I hope you get things sorted xx

[angelamoore1969]

I think I might be able to help.

My son was on the supplement the decreased his tics significantly. He was diagnosed with Tourette's Syndrome, ADHD, obsessive compulsive disorder and anxiety disorder. I searched for years for answers and finally found the supplement made specifically for these disorders. A couple of months after I had him on it they quit making it do to selling the company after 20 years. Me and many other parents I've been trying it were devastated because it was working for a children. I'm excited to announce I've worked for naturopathic doctor to recreate the product with even better ingredients. The results have been amazing. I 100% believe that Tourette's and comorbid disorders associated with it can be helped with the right supplementation. I'm actually creating a website to let more parents know and people struggling with these disorders. Everyone that's tried our new product is reporting amazing results also. If you're interested email me at [e-mail]