Tinnitus that reacts to every sound

[SueX]

I struggled for ages with the title to this post. I'm finding it really hard to describe what's happened to my Tinnitus! It's there making a kind of 'electricity sub station' noise all the time and pulsates with my heartbeat. But....in the last few days every time I hear any sound or move my arms or legs the tinnitues seems to revebarate - if that makes sense. So...when there's a sound my right ear seems to hear it normally but the left ear seems to hear the sound but the tinnitus then hisses alongside the sound. I'm finding this strange, really strange...and a bit scary. Does anyone have this (better not be just me...) 😱

[avirata]

hi SueX, slightly have similar symptom only for the last observation you have .I have mixed hearing loss in both ear. on my left ear sound clarity is not clear , it is like after each sound what it hears from outer environment ,it adds hisses at the end of each sound . Quote annoying for me to use hearing aid also.

This symptom also started lately from last couple of years.

If I won't use hearing aid then I won't hear anything, only some random Tinnitus noises will be there 24*7.

I was doubting it might be hyperacusis but it's not exactly matching with what I have.

[Upbeatmap]

Hi SueX

I have something similar called autophony. It is where you are hearing noises of your own body amplified. For me I hear my footsteps, my neck crunching as I move it, eating and my own voice.

For me, it is caused by a condition called Superior Semicircular Canal Dehiscence. While it is rare, it is worthwhile you looking into it just in case: en.m.wikipedia.org/wiki/Sup...

Another key symptom is pulsatile tinnitus in time with your heartbeat.

[Pipster25]

l am very similar in symptoms to you Sue. Your description as being like an electricity sub station feels like me. I have the reactive to sounds and muscular movements as well which is somatic tinnitus. This development occurred one year ago now, previously I had a low level non reactive tinnitus not loud. Now it’s very loud and debilitating. Not possible to habituate to.

[SueX]

Eeeek. You are further down the track from me but you say it's not been possible to habituate to. Poor you. How do you cope then? I'm not really coping. I devote a certain amount of time each day to researching the condition alongisde work and family responsibilities and each day I tell myself that 'today might be the day I find something that helps.' I would love to be able to habituate!

[Pipster25 in reply to SueX]

Hello Sue. I think I have managed to get to a point where I can tolerate it rather than habituate to it. I avoid for the most part but not entirely things that I know will aggravate the T. I can watch TV for example but it sets it off so I keep that short or use subtitles. I try to live my previous life as much as possible but curtail it a bit. I used to watch Grimsby Town FC every week but now go less often with ear plugs. I wear ear plugs quite a lot but not all the time. They came from Specsavers. I think if you have reactive tinnitus it’s the way to go as long as you don’t overdo it .I also regularly use a pain hypnotherapy relaxation CD by someone called Val Ryan which I got from the pain clinic some time ago when I had a motorbike accident. She is the best I have come across. Occasionally they come up on eBay and Amazon. Also don’t spend all your time indoors, get out and get some fresh air. You have to find your own way with tinnitus as the sad fact is the medical profession appear to know very little about it. Best wishes.

[MobilePhoneandStress]

Truth is, we're all on here with horrific life changing symptoms like yours. The medical profession cannot help. On a walk with a friend, I once asked her to stop next to an electricity sub station, and chat to me. Then I asked her to imagine living like that but it's inside your head (not outside). Nobody understands except us.

I believe it's partly electro magnetic radio frequency constantly damaging us. Plus vast digital data + visual resolution overload - the sheer volume of which; is overloading our brain storage and ability to manipulate and cope.

[SueX in reply to MobilePhoneandStress]

Fascinating. But scary!