And so it goes on

[Hamish4]

I read several post hoping someone has come up with a cure. All I can see is us all trying to cope. Mine started after chemotherapy. It’s dragging me down, even one day of silence would be a blessing. Believe me I have tried it all. This week it’s been particularly bad. Don’t know if it the warmer weather or something else. Several years ago a neighbour of mine hung himself and I remember saying why would you do that if you just have tinnitus, have I ever ate my words. I understand totally why he did it.

[Happyrosie]

I’m sorry you feel this way. As there is no cure, or at least none as yet, like multiple sclerosis or arthritis, we have to make the best of what we’ve got.

[rabbits65]

I’m sorry you’ve had that awful experience of your neighbour taking their life because of tinnitus, must be leaving you feeling more despair. However, please remember all the thousands and thousands out there that are coping, I’m coping. You will cope too. 🍏🌈

[Hamish4 in reply to rabbits65]

Thank you so much. I wish you well x

[bantams]

Hi, You have got to try and stay positive and to not let your T get you down, I know it is easier said than done. When my T started over 4 years ago I thought no way can I live with this sound in my head but over time things started to improve as I gradually learnt " how to live with T"

At the moment I am having issues regarding my house move and my T is back up to a 8/9, but I know that once my house move is sorted it will go back down to it`s normal level that I can live a normal life again.

[777john]

Mine started after chemo was horrendous for a few months but settled down for the next 22 years to a point where I could hardly hear it then 3 years ago I had a bad head injury which sent the T in to orbit and I ended up on the edge of a dam with sleeping tablets and a large bottle of jack Daniels,when the noise gets to a certain level it can be impossible to live with it and if I'm honest it's only because I was a coward that I didn't end my life it takes courage to do that so I struggled on, it was a living nightmare, for me its the constant of it never getting a break it just wares you down but i have come through it,I'm sat down now and it's screaming in not just in my ears but also my head but do you know I feel good im just used to it now and if I can get used to it and cope then anybody can in a bit I'm off on one of my walks going bird watching and soaking up a nother nice day then calling for a pint ,I also sleep very well now I think that is the key after a good sleep your head feels less full in the morning and that helps a lot being tired a lot can irritate the T, I won't say your T will get better in time but your mind set will, one we except our T we can move on ,best of luck.

[Untold in reply to 777john]

Hi 777. I'm only two and a half years in but your post struck a chord. My T is a brutal non stop curse. It spikes with most body movement and also has an echo type thing going on as it resonates through my skull, along with the crackling, ticking and electric shock type zaps. I can't leave the house and take Loprazolam to get two or three hours sleep a night, and the idea of a walk and going for a pint is a distant memory. I'm sure mine is caused through a nerve/cervical instability issue. I'm hoping for some form of relief and have made the decision to keep fighting, at least for the rest of the year, so I can have one more Christmas with the people I love and then go and find my own dam. As you say, a living nightmare.Good luck my friend.

Love and silence to all.

[777john in reply to Untold]

It breaks my heart to know you are suffering i know exactly the state of mind you are in tinnitus is not just ringing in your ears it comes in all forms and all weird sounds, if you can manage to get more sleep then you will cope better i had a terrible time with anxiety tablets but in the end managed to find mirtazapine which helped me a lot and all so made me sleep better i know its easier said than done but keep fighting my friend at one stage the thought of going for a walk and having a pint was also seemed impossible to me i stayed home 24/7 i honestly thought i was losing my mind but here i am, when all seems lost good things can happen.

[seabob65 in reply to Untold]

Sounds like somatic Tinnitus? Me too,,I have been having Cranial Sacral Therapy and as I have an impinged shoulder is doing all sorts of horrible things to my T, I have been recommended an Osteopath who I understand can help readjust our bodies and help T, so just a thought,

[Untold in reply to seabob65]

Hi seabob. Pretty sure mind is a cervical neck related somatic tinnitus. Spoke to an osteopath, she made no promises but said she may be able to help. She said I'd know if it was improving things after two sessions. Had two sessions didn't bother with a third. Also saw a chiropractor, he said exactly the same, and again I didn't book a third. Still living with it.

[seabob65 in reply to Untold]

oh am sorry to hear that, that's left me deflated.

[Untold in reply to seabob65]

Who knows, it maybe different in your case. Good luck.

[Ray200]

I'm so grateful to Bluetooth technology which has given us wireless headphones. I can say to tinnitus "move over, the radio is coming in here" and mean it.

[seabob65]

Hi - will send you a DM as i have been advised not to recommend a particular person who actually can help people with Tinnitus, it is simply not true that there is no cure, its true there is nothing medically at this time, but we can definitely improve it and in time it can go, will DM you.

[Nathalie_007 in reply to seabob65]

Hi can you please send me details of this person. Many thanks 👍

[seabob65]

Hi, i have sent you a private message, i do think sometimes air pressure and heat can make it all worse, well, it seems to for me!!! what i think will helps sometimes backfires in my face!!

[Hamish4 in reply to seabob65]

Hi darling, I don’t know what the answer is. I do like to hear from you all. I don’t feel alone. I am just trying to keep as peaceful as possible at the moment. I wish you well x

[seabob65 in reply to Hamish4]

hope you read my private message.

[Hamish4 in reply to seabob65]

Yes, look on this group as an understanding friend. It does help not to feel alone. It’s my go to place when I feel desperate. I wish you well x

[Kellythecat-74]

Sadly your neighbour was one of the rare extreme cases. Millions of us do find a way to cope. Its not an easy or a quick fix and the road is different for all of us. All those years ago I think I was very near where you are. I even transferred any savings into my sons account. I wasn't sure if I could live with the screaming noise it all started with, or if I could get out of the depression I was in . More tears than I've ever cried in my life.

Sorry if this sounds depressing , but I want you to know that it does get better. I spent a year looking for a "cure" . I think when I gave up the search, was when I started to accept it and from then on it got easier and eventually quieter. Find things that you do enjoy , every moment of that is gold.

[TinnitusUKPat Partner]

Hi Hamish4

I'm glad to read you've had some very positive gestures of support from the community here.

You mention that your tinnitus developed after chemotherapy - some people do experience changes in hearing after chemo, potentially as a result of medications which save lives but can have a significant impact on our ears.

Having a feeling of low mood or frustration with tinnitus is very understandable - but as other writers in this thread have observed, tinnitus can improve when you find the approach to the condition which works for you.

Please call us during weekdays, 10am to 4pm, on 0800 018 0527 if you want to speak to a member of the Tinnitus UK team or use our webchat service on tinnitus.org.uk during the same hours.