just curious how do you cope day to day?

[Elane8701]

I’ve had tinnitus for 12 years and do definitely find it hard to cope. I do really well for a well and get used to it, then have a flare up or something and have to go back to square one. How loud is others tinnitus as well? I don’t tend to hear mine when out and about unless I try and listen for it. Can hear it at night so I put white noise on x

[TinyTin]

That sounds similar to me, just seems to die down a bit, then subjected to loud noise by using the bus or something, then very loud again. I just think of the old saying: 'This too, shall pass'.

[Elane8701 in reply to TinyTin]

Yes gotta keep hope 🙏 mine gets louder when exposed to long sounds as well. Loud motorbikes are the worst 😒

[Ray200]

I cope by knowing that at some stage or stages in my day I can escape (milder) tinnitus. Using headphones, for radio, watching TV and the like. Apart from the relief, it is proof that the thing is not the master of me, but a 'dependant'. Dependant on me putting up with it. I would also recommend bus rides. It was only after tinnitus came that I realised those things are so noisy that tinnitus takes a back seat for the duration (I do like puns).

[Elane8701 in reply to Ray200]

Yes I use bone conduction head phones when I’m around the house, they help a lot

[Jamdonut]

I have T that I can hear 24/7 on top of shower, kettle , outside anywhere. It's 5 tones including muscial and never leaves. On top of that I can't go anywhere as the noise makes my T worse Think yourself lucky.

[Elane8701 in reply to Jamdonut]

So sorry to hear that. How long have you had tinnitus for? It’s such a difficult condition to manage isn’t it? An invisible illness. I really hope they find a cure or at least something x

[Terence1955]

Mine spiked considerably after ear suction 5 weeks ago and it is blaring non stop Like you have had tinnitus for years but this is something else and also like you I think I'm coping or deflecting it then it comes rushing back in

[Elane8701 in reply to Terence1955]

I feel you. I too had microsuction but I’m not sure if it’s just my auditory system adjusting 🤔 I feel like mine is louder but sometimes I’m not sure if it is or just because I’m reacting negatively to it 🤔

[Terence1955 in reply to Elane8701]

thank you for your reply, Ialso have that feeling but it has definitely been louder since I had it done, but I am trying to detract from it but sometimes I feel so desperate, Terry

[Elane8701 in reply to Terence1955]

Aw have you tried steroid nasal spray? That really helped me for T to settle down even just a bit.

[Jimbob7]

Loud as hell - all the time. Hate it - never going to be welcome in my head.

How do I cope? I do whatever I need to do in that moment of suffering. I walk, I drive, I meet mates and laugh. Sometimes I just medicate myself away from it. Whatever it takes to retain my sanity.

Here we are Monday morning and it's telling me it's going to dominate my day - really god awful hissing and rythmic ticking crickets, etc. I've just hit it with this list of famous people who have T:

google.com/search?client=fi...

We're all suffering but by golly are we in an exclusive club here with the likes of Michelangelo, Beethoven, Keanu Reeves, Richard Attenborough, Dave Grohl, William Shatner, etc...

Have a good day -

[1Dar]

Hi Elane.. it’s good you can block your tinnitus out sometimes. I have had tinnitus for 8 years now and I’m onto my second Cochlear implant after 7 operations on my ear. It’s been a long journey .. I have pain and tinnitus , but just have to keep going and smiling. Hopefully someone will one day come up with something to cure the tinnitus. Do you have it in both ears? I only have it in one ear thank goodness. Take care, hopefully you will get some good nights sleep! 🌞

[Elane8701 in reply to 1Dar]

Yes I really do believe in keep going and smiling though it x I have it in both ears but right is much worse. Left is barely noticeable because right is louder 🙈

[1Dar in reply to Elane8701]

Hi thanks for message. You sound very positive which is great. Would you be interested in private messaging me? Jenny 🌞🌞🌞

[Ruud1boy]

One day at a time. If I'm having a bad day, I just try to get thru' the day as best I can without crying too much and hold on to the thought that the next day might not be as bad.

[Elane8701 in reply to Ruud1boy]

Yes I have good and bad days and try and not be anxious about it, even though that’s hard!!

[1Dar in reply to Ruud1boy]

Great positive attitude , I do the same but it’s tough. Hoping one day someone will come up with something . Have a great day 🌞🌞

[Terence1955]

Mine used to be like that but since the dreaded day 5 weeks ago I had ear suction it has spiked and can hear it vuirtually all the time. Playing tennis previously I didn't notice it , now even that does not temporarily release me from the noise

[Terence1955]

where do you get that bio nasal spray from ?

[bobsheppard]

It's a very difficult question to answer, I have had T for just under 50 years now and was really hoping that retirement would reduce it with less stress, but in fact it was the opposite which according to group I attended this is common. The only way I find to deal with my T is to do something that takes your attention away from it, I seem to be able to tune it out, as it has been a partner of mine for such a long time, something that you just learn somehow. Like you, sometimes it increases in volume and I always worry it will not return to its usual level, fortunately so far it does seem to go back, but again I try to focus on something else I really enjoy doing.

I try to avoid places with hard surfaces that bounce the sound the sound around as hearing conversations I find difficult in these situations. I also use good musician quality noise reduction ear pieces at concerts and events to help.

There is no formal solution or answer I hope you can find something that lets you take your mind off it, good luck

[Seabob]

Its incredibly hard isnt it, i discovered Julian Cowan Hill on You Tube please look him up...he had awful T for 20 years and is now recovered, he has an app 'Quieten' free months trial, he explains what T is and what we can do...no medical cure but there is hope, we must be positive with this condition, its a stress response, whatever is causing the T in the first place needs to be addressed and then we can find ways of lessening our reaction to the noise, please know i too am finding this the most challenging condition i have ever dealt with, and that includes having thyroid cancer. Please look him up as he has a positive take on Tinnitus.