ETD TINNITUS

[Untold]

Just a quick question, I'm still working on a process of illimination. Is it possible to change the volume/pitch of ETD induced tinnitus by moving your jaw. Any ideas or experience of this?

Cheers.

[Mille23]

If your Tinnitus is caused by TMJ = temporo mandibular joint disorder, it might be possible to change the volume by moving your jaw.

[Untold in reply to Mille23]

Thanks for replying Mille.Apparently I don't have a TMJ disorder but I have all the symptoms of ETD with severe tinnitus. I can change the volume/pitch with jaw movement and am trying to discover if this is possible if ETD is the problem.

[Mille23 in reply to Untold]

I have an EDT as well.

But no TMJ. I can’t pop my ears, by examination , my eardrums dont move, when I try popping the ears. Which they should. Tinnitus is intrusive 24/7. I feel blocked in my ears.

Later on in the year I am going to have another examination in the hospital. The ENT ‘ s I have seen , that is several, don’t agree in diagnosis, which is aperta tubae = open eustacian tubes or clogged eustacian tubes.

[Untold in reply to Mille23]

Hi Mille. Does your tinnitus change in any way when you move your jaw?Cheers.

[Mille23 in reply to Untold]

No, there is no change , moving the jaw.

[Happyrosie]

I’ve never tried to change the noise of tinnitus by moving my jaw. I suppose (now having tried it) that it does alter in tone just a bit.

[WildIris]

Moving my jaw to the left makes the left very slightly louder and vice versa. None of these moves change the overall volume much. I'm the one who advocates for peaceful acceptance of the sounds, after many years of negative feelings. Doubt that's what you're asking.

[Untold in reply to WildIris]

Thanks for the imput. I'm on a mission to at least find some kind of resolution with a process of illimination, to make this at least bearable. I'm completely unhinged at the mo.

I find it unbelievable that they can do a complete heart and lung transplant yet are baffled about my T.

Cheers, have a good day.

[Bbcoach]

Your experience sounds exactly like mine. Mine started all of a sudden app. 2 1/2 years ago. I can also change the volume of my tinnitus when I move my jaw forward. The volume also increases when I move my head all the way to either side. I have found out this is called somatic tinnitus. I thought, just as you, that there must be something physical that is causing my tinnitus and set off a journey of GPs, ENTs, Dentists, Chiropractors, had a couple of MRIs etc... No apparent reason for the tinnitus or for being able to increase the volume with jaw or head movement. I have used sound therapy that matches the pitch of the tinnitus that helps sometimes. It took a while but the most help I have received is from a wonderful therapist that has helped me deal with the emotional side of tinnitus. The tinnitus is always there but since I started therapy I have found ways to not let it dominate my life as it did for quite a while. Don't know if this helps but there are many of us that have somatic tinnitus. It is a journey but there are ways that can help you deal with this. I wish you all the best.

[surreycccfan]

I have spoken to a couple of audiologist about this as I have wondered this to. Basically as I understand it (and I am no clinician) it seems many people can do a physical manoeuvre that alters the loudness and pitch of their tinnitus - know as somatic modulation of tinnitus

This was first observed and published in a paper in 1999 by Dr Robert Levine, a neurologist

It seems this can be explained by the fact that at the point that sounds enter the brainstem at the dorsal cochlear nucleus and start getting processed. At the very same point sensory information from the face, neck and jaw enters and gets processed

However, somatosensory tinnitus may occur alongside a head/neck injury and may have a different diagnosis/explanation

[Glynis-ringingears]

Hi Untold, Usually ETD your tubes get full of mucous etc

Allergies, sinus problems etc.

Extra pillows at night help drainage and steroid nasil sprays can help,saline nasal spray wash,antihistamines etc.

As you say moving your jaw changes sound this is because your jaw joint is by your middle ear but could agrivate your tinnitus.

Hope this helps.

Glynis

[Hidden]

Hi please look up Julian Cowan Hill on YTube for all things T related, he has an app 'Quieten' free months trial, and addresses ETD.

[Untold in reply to Hidden]

Hi Seabob, bizarrely I've just commented on one of his YouTube videos and he replied almost instantly. Seem like a good bloke. Will let everyone know how things pan out. My T is only at 9.99 today. Cheers.

[Hidden in reply to Untold]

He is a genuinely lovely man, I am obviously not affiliated with his app but endorse it as I have it!! It also entitles you to twice monthly zoom sessions with him and other T sufferers (if you subscribe) - all at different stages and we all try to add our positive and encouraging takes on what is helping us - I'm sorry about your levels, mine is not good either!! Am trying to not let it dictate what I do anymore, easier said than done!!!! Please let me know how you get on!! The zoom sessions are incredibly helpful and I always come away feeling more positive 👍