I value this forum: Telling your story on this... - Tinnitus UK

Tinnitus UK

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I value this forum

Bellyboo profile image
8 Replies

Telling your story on this site helps with the mental side of T. I’ve habituated which in my book means it no longer scares the s..t out of me for 99% of the time. For 4 years it consumed my every living thought. My T started 40 yrs ago and is now severe and spikes without warning but I live with it quite happily and my quality of life is good. I’ve spent a fortune on diets which don’t make slightest difference. I’ve cut out salt / caffein/alcohol/even taken myself off my bp medication with no difference to my T. My advice to all is 1….Don’t fear it …it loves terrorising you. 2…… Breath deeply and consciously when you’re stressed. 3 ….Remember all those worse off than you?

We’re all on the same journey and need to help each other on this forum as this is where the knowledge is. Merry Xmas to you all ..ispecialy to Happy Rosie and the team for their valued imput.

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Bellyboo profile image
Bellyboo
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8 Replies
Happyrosie profile image
Happyrosie

wow Bellyboo thank you for your kind words!

To me, T is a little imp that sits just out of sight (I get a glimpse just out of the corner of my eye but when I turn round he jumps out of the way) and giggles at me in an inane way.

You mention change of diet : Someone on this forum suggested magnesium so I’ve been taking this for the last eight weeks - it’s in the house as my husband takes it for his bad back. He and his golfing buddies, all in their seventies and eighties, take magnesium for their aches and pains.

Anyway, if anything the T is louder than it was so I’ve stopped taking the magnesium.

happy Christmas to all of us and especially to the staff of Tinnitus UK - with a special mention to Pat.

perlcoder profile image
perlcoder in reply to Happyrosie

Magnesium seems to be the "in" vitamin at the moment. The excellent cardiology consultant Sanjay Gupta ("York Cardiology" on Youtube and his website), is very keen on it and explains why. Like Bellyboo I am wary of abstinences and supplements as cures for most conditions (costing money and sucking the joy out of life), but I may give Magnesium a try - hoping it won't make mine worse.

Sonnybee profile image
Sonnybee

Well said Bellyboo. I done something similar for around 2 years, changed diet, cut things out, stopped doing things I enjoyed, bought things I thought might help etc. All I was doing was making the tinnitus MORE important. Although I do try to keep a healthy regime for other reasons. I think time is a big factor with tinnitus though, and we all tend to go through similar dramas in the early stages. Eventually we realise that T does its own thing most times and its up to us to put it way down the list of importance!! Thats why its commendable for people like yourself, and other regulars on this forum, who have habituated, to stay on the forum and help others. Take care.

Yogachamp profile image
Yogachamp

Hi

I agree with all your comments , when I first started with T in 2021 I literally wanted to die

Now I just get on my life & won’t allow it to take away my happiness - I did all the usual not allowing myself coffee & changed my diet was scared to take even a painkiller tablet

This forum gave me hope & I too thank all those that took time to answer me every time I came on here out of desperation - just to know your not alone in the world of T & you can learn to live with it . Happy Rosie - Doglover to name just a few always came to my rescue , you know who you are

Happy Christmas & Happy Healthy 2024 even with T & as you say there is always someone worse off than you so count your blessings 🙏🧑‍🎄

Flickie profile image
Flickie

yes totally agree with you…this forum is very useful and reassuring. My tinnitus started after my husband passed away 30 yrs ago. I live with it too and control it by not letting it take me over.

Merry Christmas to all xx

palBuddy9 profile image
palBuddy9

Thank you so much for this site and especially replies from sufferers, I value their experience. Have a lovely xmas and new year to all. xx

Tal-r789T profile image
Tal-r789T

Since my T got profoundly worse from the start of 2022 (I'd started noticing in the summer of 2021) I've found this forum has been invaluable. I was at my wits end last year and it gave me some sense of perspective reading the posts here and it's helped me bring T onto perspective.

My T (I am told) is down to hearing loss; why I have hearing loss is something that cannot be determined. However what came hard for me was having to accept wearing hearing aids at my age (I'm not that young but I'm not 50 for a few years) It took me a long time to accept that, and I even rejected the idea, not wearing them when I should.

But again reading others stories gives me perspective and hope that I will habituate eventually. Thank you all for the support.

Merry Christmas and a Happy (and looking forward to a quiet) New Year

doglover1973 profile image
doglover1973

Totally agree Bellyboo This forum is a lifesaver for me as there are no groups in the area. Knowing there are lots of people who know and understand what it's like is a wonderful resource. Your advice is spot on. Merry Xmas!

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