I can't take this anymore. There is too much suffering, so my life is over at 33. It's just too loud to habituate, too. I've seen on many posts on here that all there is, and it is suffering and worsing. I can't believe there is nothing that can be done for this. I don't know what to do anymore, i can't live with this. Only thing that could help is the T qlbeing quiter and nit so high pitched. But that ain't happing fck this world
This is too depressing: I can't take this... - Tinnitus UK
This is too depressing
Hi there. I could've written a post along those lines in Autumn 2020. I was really suffering back then but things are better now. Not because my T is quieter or less intense but because I've got used to it most of the time. Please know it's possible to get to a place where you can be happy again. If I'm honest .. Life isn't the same but it's still worth living - for myself and for my family & friends. Yours will be too. Just give yourself a chance to get there. It takes time.
I don't think i can be happy with this torture.
Believe me you will overcome it. Have you been seen by the tinnitus clinic yet?
I wish i could believe this.
It feels like torture now but it won't always feel that way.
I have high pitched squealing in both ears, and right now mine is through the roof as I have had a sweet hot drink. I have had my t for over 2 years now. It has not been easy but I am to a point now where most of the time I can ignore it by staying busy and not focusing on it. I miss silence as no such thing anymore , and still struggle at times to read a book but just accept it for what it is. Initially I could only sleep with earbuds in and white noise playing all night, now I can sleep without them. I know it's not easy but the more you focus on your t the louder it will get and the more stressed you will become. For me the only thing that worked was to carry on as normal, as hard as that was, and to focus on the things that I could still do and enjoy. When it's bad like now, I try to find a film or something to do that will take my mind of it. It does get easier with time, and I think we all find our own ways to cope. To be honest would I rather not have it god yes, but does it effect my overall quality of life now, not really. Be kind to yourself, it does get easier.
Mine is bad all the time. Loud 24/7
I know. My spike is still going on squealing like a banshee in both ears. As annoying irritating and frightening as I find it I don't know how else to cope other than to carry on as normally as I can. The other alternative does not bear thinking about for me. So ploughing on is the way I chose to go.
Have a look at the Starkey relax app and listen to it carefully. Not to your tinnitus but to whatever theme you have chosen. I am only noticing mine now because I’m talking to you about it.
Nothing can mask my T i hear it 24/7 i can't relax that is my main problem
This won't be any consolation but I m in exactly the same boat. My partner has called the crisis team several times, my t is horrendously loud, can hear it over everything, had it since last June and got worse over the winter. I can hardly eat and am house bound but hopefully you aren't this bad.
Great more suffering
u need to speak to GP about meds i think - certain meds can be authorised by ENT
I've spoken to my GP, and I'm not taking anything else from them again, sertraline caused my intermittent T years ago, and a steroid spary has caused my 24/7 loud high pitched T.
Utdmad89 - it's clear that you're struggling. Please give our helpline a call and speak to one of the team about the difficulties that you're having.
I don't see how talking is going to help anymore. We have spoken on webchat a few times and nothing has improved im afraid
Things will improve. You will habituate given time. My tinnitus started roughly 6 years ago. It was one high pitched sound but low volume. 15 months ago I woke up to 3 different sounds which were horrific. The sound changes with jaw and neck movements. I thought my life was over and I wouldn’t be able to cope. I went 5 days without sleep and thought I was going mad. Things slowly but surely got better. I got my sleep better by taking Mitrazapine and using a sleep headband to distract me. Once my sleep improved my stress levels improved. You must try and stay calm though and tell yourself your tinnitus is unimportant.
My tinnitus was about a 9 out of 10 at one stage but in all honestly there’s a lot of time where I don’t notice it. I’d say it’s probably about a 3 out of 10 now. I have my bad days and spikes but I keep my self busy and just always tell myself it doesn’t bother me. It was particularly overwhelming in those early days but take comfort from the good people on this forum. You will get better and you can get through this. All the best.
Most i see on the forum are people struggling still after years. That doesn't fill me woth hope
well, with all due respect, you either accept what is happening and try to make the best of it or you can mope about and your condition won’t improve. You can’t control your tinnitus but you can control your reaction to it. I know how hard those early days are but if you follow the good advice you receive you will soon see positive results. The sooner you get into that mind frame the better. Meditation and sound therapy helped me a lot also.
acupuncture , CBT. Hypnosis .
Good post. It gives me hope hearing that a 9/10 can go to a 3/10. It’s when there is a change that most of us are badly affected. It knocks the stuffing out of me but in a few weeks I recover. Just the worry about the future!
Listen to what everyone is trying to tell you. Do you have ear pods for your phone. If so try playing a theme from the Starkey collection. Get your go to refer you to the hospital. I go to the tinnitus clinic, some to ENT.
I'm not going to use earphones again. They could make things even worse
yes - some of us have to be very careful with sound therapy and i cannot use ear pods or anything in ears at all. I use a sound therapy box at night just on a very low volume below my T volume , although not sure if it helps.
its still EARLY MONTHS for u Utd - many people with T come on this forum when they are struggling in their early months with T and then when they are in a better place, they are not on here so much - this is the vast majority of forum members i would say. You can get through this - you can get to a better place - I am doing CBT Breathing exercises and I didnt believe it but it really can work to calm your anxiety -
you can find these on youtube: tinnituseprogram.org/breath...
tinnituseprogram.org/physio...
I've had CBT in the past for other things, talking isn't going to make the sound go away. Or make it less intrusive.
Utdmad (please don't tell me it's Manchester). I have followed todays extremely difficult time. We all know where you are, certainly on this website. There are many either in your position, or been in your position. You really do need medical support, and help from us.
People on here will know me, and of me. They mayknow of that first stress anxiety i suffered, waking up. Feeling sick, need the bathroom. cannoned between walls either side of me on my way to the bathroom. The worry about what it was, and the sickness due to Tinnitus and Menieres. Life has many of these events. Some you may have already met, and some to come. One thing has helped me on my continued time here, is my family and lovely wife showing such compassion to care for me in those bad days. Also the dread and fear that you would deprive them of their ability to love and support you. I am certain all around you would want to know that the bad days they are here, and always here. You can do this, yes keep us posted but get the medical people urgently, and please do continue to talk to Pat or his team, talk samaritans. So, did i do it. I have had this now for 22 years. I'm loving life, I have fun and relax. Yes i still have Tinnitus 24 hours a day, 7 days a week. How do i sleep? within 5 seconds
I’ve offered support and advice. I know what’s worked for me, specifically getting into the right mind set. If I can help someone with a bit of tough love then that’s fine with me. If you chose to be offended on someone else’s behalf that’s also fine. All the best.
My partner had to call the emergency crisis team today to stop me from killing myself. But yeah, I'm moping about. Toxic tough love isn't what people want to hear
toxic tough love? Ok. Well good luck anyway and I hope that you can find some peace.
I’m sorry to hear you are in this dark place. I was too but 2 years on I’m living my life exactly as I did before. In fact with more passion. I have loud high pitched T 24/7. After a few weeks your body adjusts to sleep again, that may seem impossible now. A few months in, I started to think, this won’t beat me. Wild swimming became my thing and swimming in a pool most days I can. Take a cold shower, go for a run. Focus on the parts of your body working well - walking in itself is a miracle! Know that you won’t always feel like this. I still hear and think about my T a lot but I have a full and happy life. This is possible for you. Please give Tinnitus UK a call - they helped me on a few occasions. Good luck and don’t give up hope!
yes, its not a one size fits all , which many on this forum think T treatment are , but i understand they are putting forward what works for them. Even though we all have T , on this forum, we cannot always understand or have experienced the level of volume or intensity others are going through
you have a kind thoughtful,partner, I don’t I live on my own with my poodles. Have you tried going out for very long walks, enjoy the sun, and birdsong. It really helps me to go out for walks, look I have arthritis in my back and feet, do you know what there are worse conditions to be going through , arthritis is so painful and difficult to control. It is possible to control your T , it will happen for you eventually.
Sadly you are not the first or last person that has been or is in this terrible dark place, I have been EXACTLY where you are, no one understands the absolute TORTURE we suffer 24/7, however with help and support, even though my T is still sky high I got back to living my life again, it was a horrendous journey but I got there, needed support as I had “ given up” so, folk on this forum do have some understanding and have been where you are. So why shouldn’t you end up where we are, yes, life is not the same but certainly now WORTH LIVING, I feel for you but face the fight, you won’t regret it.
Hi Utdmad89, I, like others on here, started in a similar place as you are now. My tinnitus and hyperacusis cane on suddenly in 2020. The sound was unbearable and the hyperacusis (sound sensitivity) meant i struggled to be around everyday sounds. i felt my life had come to a stop and i could not see nyany way through it. 18 months later my hyperacusis had almost gone and my tinnitus had lowered in its intensity and intrusiveness. i hardly noticed it as my brain had habituated and leanrt to filter it out, unless i listened for it.
For the first months of onset there was absolutely no way i could see that the noise would lower amd i would get used to it. that did not seem possible. looking back i had the same help and advice as others have given.
as you say, forums are full of people looking for help. once sufferers have overcome this, most dont spend time on forums. therefore the forums will be more weighted to struggles and hardship rather than success stories and relief.
i can only reiterate that time is the healer. I believe the first step is reducing the anxiety and fear and finding ways to sleep. After this you find ways to help the habituation process such as CBT, sound therapy amongst others.
I and others are hopefully proof that things will get better. Please try and keep strong for your loved ones and let them help you get through this very tough time.
So many truthful and positive posts in this thread Utdmad89 - please try to take a moment to read through what members are sharing with you about similar experiences of tinnitus.
You don't have to speak to me, but if you do have time today, have a think about calling the Helpline and talking to one of the team if that's something you feel up to doing. The number is 0800 018 0527 and it's open until 5pm.
Every minute feels a hour, every hour feels like a day its a living hell, iv been there so have many others, nothing i say will make you feel any better, you just want to die. low tinnitus is something we can all live with, but when it gets to a certain volume it can consume us and its horrible. Believe me my my friend iv probably been down a deeper hole than you have and believe me again you will get out of it, one day you will suddenly think ohh its not as bad to day that's what happens, your tinnitus will calm down , i know you can not see that right now but hang in there, get your self out of the house, go a long walk i do that every day, go and have a pint or just walk around the shops,it does make a difference, yes when you get home again you will feel horrible but it does break the day up. Life will improve my friend.
I hope you're right
Mines loud too . Read my reply to john. sending you hugs .
I do agree there John after reading all of these comments to UTD, its only when you are out of the house (with other noises and disstractions) is where you can find peace for a while. UTD is still young perhaps walking for eg, wouldnt be their thing. EACH PERSONS T is DIFFERENT AS IS EACH PERSON.
Going outside makes no difference. I hear it loud everywhere.
I had the same . Noise louder than cars , tv , phone , people talking etc. It did get quieter when I started ignoring it by being busy . Going out with friends , swimming anything to get your mind away from it . Maybe just a few seconds to begin with . X
Yes, it took months for me to sleep without any herbal help or whatsoever. In first weeks I was only able to sleep in this way: half night wandering on the streets (fast to fatigue myself), half night - kinda sleep.
I was angry and without hope as well. On one ordinary morning my mind said "f**k i don't have will to be angry anymore it's too exhausting". My tinnitus did't got quieter at that time - I simply started to live anyway....
It takes me a while to sleep, but then i sleep ok. It's when im awake that i feel torched
Hi Utdmad89 - have read thru’ all posts on the thread. You know what - the fact you’re reaching out could b seen as a real positive step you’re taking at such a mega challenging time for you - I am daring to hope you might continue to reach out, even though nothing seems to be of help right now … something may prove worthwhile even if right now nothing feels that way. Sending you strength from a fellow traveller with Tinnitus - VeeCat.
I would just like to be able to relax again
Try to keep yourself occupied dear Utdmad89. Remember it’s painless and harmless. I know how nights are the worst - for me it’s the case. You will get thru these early days and get used to it.
All day is horrible
Hi Utd
We all have T on here.
The key to coping with it is how we describe it to ourselves, as in:
a- poor me, it’s such a loud noise, can’t see any way out, or
b- lucky me, to only have T to deal with, when it could be 100 times worse
Please read my own T post describing how I went from
A, taking benzos every night for 10 years to get to sleep, to
B- where, I now count myself so lucky to just have T to deal with and no benzos for 5 years now
Final point - my wife says this to me, on a daily basis!
X, make a long long list of the things going well in your life and, for sure, when you reach 20 or so points, what was formerly troubling you (T or whatever) will fade away.
I well remember as a teenager, being absolutely miserable having a spot on my forehead and not going out as a result.
When, I should have followed my wife’s advice and counted all the things going well in my life.
All the best!
Persevere
I'm so lucky to have lost 10 yesrs if my life to agrophbia and icd, I'm so lucky to have no driving licence, no job, no friends, no qualifications ,I'm so lucky that just after 2 years of therapy i was getting my life on track that now i have very loud high-pitched intrusive T that means i can't be in the same room as my 1yo because he is loud and it literally hurts my ears! Im so fcking lucky that i tried to kill myself. Oh sorry that's poor me thinking.
Thanks for all the comments. I know people care. I'm just finding the constant noise hard to deal with. I was doing so well before this happened, and it has sent me into deep depression. I'm scared to take AD because that's what caused me to have intermittent T before all this. I'm trying to keep it together for my partner and son. Just don't know if i can take years of this to be honest. And those who think tough love or telling me not to feel sorry for myself is trying to be helpful well it's not. I'm not a weak person and have been through many hardships in my life without much complaints, but this is a different beast, i haven't relaxed in 4-5 months. I can sleep but i stay in bed for 12 hours a day to do so I'm still struggling with prior mental health issues which are alot harder now this has happened.
Hi, again, firstly glad you have posted again, secondly, if it’s not to personal, who have you seen about your T???, ENT or/audiology? How did you get on if you did, the reason I ask is eventually when I was seen by Audiology they gave me hearing aids/maskers, they had an instant positive impact on me, reducing my anxiety at same time, however they don’t work for all T sufferers but if you have not been down this road I urge you to get a referral and you never know, your post has certainly re awoken my pain and thoughts, some of us have been where you are, me included and I don’t see myself as “strong” so to speak, meaning if I can get through it believe me you definitely can, keep in touch , we are all with you, not just word a fact otherwise we wouldn’t be here.
I've got a 48-week wait for the ent
At 33 stop you will habituate. The hardest thing is if you love music and musicals etc and how loud everything is and every time I go to something I love and enjoy my ear rings louder and louder. Do not being able to enjoy stuff is hardest part.
That just sounds like suffering to me
This thread is bothering me, and I don't often comment here. My advice is to get treatment for your depression before anything else. I agree there is a lot of suffering in the world - you have to find a path through it. It isn't easy. Living with tinnitus isn't easy - especially at the beginning. My only suggestion is to focus all your attention on something you do enjoy - start small. And please go to your GP about depression.
you have described a high pitch T - with hissing ? Others on here have described this same sound to which they have habituated or its eased off . It s the T with other types of sound , are more difficult to habituate to - like the mid tones
like u say earlier in this post - if it could just reduce in volume and pitch a wee bit this would make a difference - coz thats how i feel about my T. C'pam can sort of do this a wee bit ( depends on the person) and is helpful in the short term to calm the system and takes effect quickly and is different to the usual SSRI anti-deps which should be avoided - but it should not be taken long -term , the docs will (should?) know all about this.
But won't the T just return to the loud baseline when not taking the medication?
are u taking any medications at all - because another new one may cause interactions?
I took this last year at a really bad time - but only one quarter of a tablet once or twice per week ONLY - NO way would i take a full tablet and these are not to be taken every day at all. It has to be used with care , this is why the docs dont like to prescribe it. The baseline may or may not come back as it was or less because u would be less stressed.
Habituation - using the classic definitions - means that someone might hear the same sounds which currently distress them and not have the same degree of emotional distress or attention to them.
People might notice tinnitus when they are under more stress than normal - when that level of stress diminishes, tinnitus goes back to that level of not causing distress or frustration.
But i hear mine 24/7. I want to be ok with it. It's not a nice noise to hear
I hear mine 24/7 and its loud all the time so i am with you on that, i think most tinnitus sufferers do not have that, so they do not fully understand how it can drive you mad i have habituated, but i would love my T to just be a little quieter and as i have said before you will habituate as well. You are going through one of those periods where the noise is just getting to you and again i know how you feel i really do i honestly thought i would go insane it was so loud, but i am ok now even with the loud T so just hold on my friend you will be ok.
hi Utd - have u taken a benzodiazapine in the past or were yr meds just the regular modern SSRI's type of anti deps
hi Utd - I expect that have u made any changed to yr diet ? I have cut out all Alcohol and CAFFEINE and just drink de-caff tea . Reduce SALT - many ready meals and takeaways can have high salt - just do mostly natural meats ( chicken, fish,meat etc) n veg dinners. We cannot avoid salt in food completely but it can be a culprit for T spikes. I check the salt content if i do buy ready meals and other foods and just go for the zero or low salt ones.
I know this is a bit of a pain to start with but then these changes just become the new normal
your T sounds like the normal T which the majority of people have - high pitch,hissing - yes very very distressing for quite a few months and then in most cases can ease off eventually
an important question is : does yr T react to noise ,like being outside in busy places, in a car, walking along street with traffic ? Does music change it at all?
If yr T is not reactive to noise - then regular sound therapy would a be good way forward for you
I don't know ,i get multiple tones and different times and it goes from loud to even louder
do u think it is affected by noise ? noise from TV ,music - being outdoors and general traffic noise etc. buys places like cafes, shops.
Many people have tinnitus ( even bothersome T) which is not affected by noise at all and can travel on trains n planes n go out n about ,no problem.
Some of us ( including myself ) have a more reactive T which is affected by TV ,music , traffic , being in a busy place etc.
Your T seems to be caused by anti-dep meds , i think u said - and i think this is less reactive to noise, although not totally sure.
have u had hearing test ? do u have any hearing loss at all?
hearing aids help a great many people - but it my case they didnt help and well, and I stopped using them after 2 days
I think multiple tones are quite common. I have a hissing in my right ear but i get different tones in my right and also in my left.. My tinnitus was reactive to sound at the beginning, almost any noise would make it spike.
Theres a lot of good advice on here, i hope some of it has helped give you hope that you can get through this and it only eases from here.
surviveT My T was reactive to noise and sound therapy worked for me. I guess it shows what works for some does or doesnt work for others.
what sort of sound therapy did you use Darren? sometimes people are not too sure how to use sound therapy correctly - i know it needs to be below the volume of the tinnitus and not mask it - according to Treble Health tinnitus Audiologists
I had a hearing aid that had a constant sort of white noise, very low and not really noticeable. The aid worked as sound therapy rather than needed for amplification purposes, it had minimal amplification set. I wore the aid every minute of the day for about 18 months until the hyperacusis had gone and the tinnitus had subsided mostly. The reactiveness of my T definitely came from my hyperacusis. I still have the hiss, but i don't hear it unless i focus on it. (i do now I am typing about it) and i have other sounds that come and go but they dont bother me.
I hope that success stories give people courage and support that it can and most likely will get better over time. Tinnitus UK (formerly the BTA) were a lot of help in getting me through those early dark times.
many thnx for this info Darren , this is very useful to know for Utd and me .
just one last question , did u have NHS hearing aids because of some hearing loss or no hearing loss.
i was forced to go private as the NHS was too slow and not helpful at the time. Expensive but worth it looking back
thnx Darren - i expect the private ones offer a better range of sounds - and it was very low like u say - as i was worried the hearing aid sounds maybe too loud
so u didnt use the hearing aids for amplification as u had no hearing loss ?
I have NHS hearing aids which play white noise and which help my hearing. I was told they cost the same as private ones when I asked would private be better
thnx Hylda2 - just wondering can u have the sound therapy without using the amplification
yes. I have Oticon hearing aids and I can switch them to a white noise mode.
I also had the Oticon hearing aids. Mine were the Oticon More 2.
Told they were £2k+. Feel very lucky to have then on NHS
Yes mine was £1500 for 1 hearing aid. I did however sell it on ebay for £800 a year later once i didnt need it so keep that in mind if you do look to buy some.
Very happy with these at the moment. I come under the tinnitus clinic and wear two
Could you hear your T everywhere? Was it loud and intrusive ?
hi Utd - my T is louder over past 2 months after noise incident -as i was listening to tinnitus sounds on a low volume then a bit louder - on a youtube channel then 1 or 2 of the sounds reacted with my T - DONT listen to T sounds on youtube. I have low volume on TV or just have subtitles. Music is a problem to me so i dont listen to it anymore - but the future i may be able to -
just got to do what need to do for now in regard to sounds - it may not always be that way
since past 2 months and intrusive and i hear it everywhere - but its more of a mid tones -
I meant Darren, sorry
no problem - just remembered i used these last year for a few months and they do cut down some high frequency noise getting through the ear canal and did sort of have a BIT of a calming effect on the T. They are not like earplugs and block sound , as everything sounds sort of natural - I used these night ones in daytime as well .Maybe worth a try if u have reactions to high freq sounds.
they just sit on exterior of ear canal very easily (for hours) and dont fall out at all
Yes, it felt like there as no escape from it and my body went into panic and anxiety mode for a good few months. It seemed louder than any other noise.
Hidden Morning Utdmad I hope you are ok. I was thinking of this post last night and wanted to add another comment.
If, theoretically, you knew that in 1 years time you would be at a place where you could hardly hear the Tinnitus, would that make you feel better equipped to get through this tough time? I say this as when I was at the stage you are in now, there was no light at the end of the tunnel and the thought of living with this sound for the rest of my life was unbearable. Looking back, if i knew that things were to get better, it would have made my journey easier, and calmed my anxiety and fear quicker, leading to an even quicker habituation I believe.
Being able to visualise that - that there will be a time when the tinnitus is not intrusive, does not cause distress - is the start of the road towards not being burdened by tinnitus. Those ideas - which are not out of the realms of possibility - take tinnitus from being a source of suffering to something that you have more control over.
I think if i definitely knew that it would reduce and not bother me in a year, i would feel much better, but there aren't any guarantees.
That is true, but that fact that you would feel better is important as feeling better is a help in reducing the anxiety and stress around the sound. Most people, if not all, in my experience over the past few years have got through the early stages to a more manageable or habituated place. There aren't any guarantees, I agree, but there is a hugely higher chance of you being in a better place this time next year say than not. If you have the belief that this will happen and backed up by the people that have gone through this like others on here, it may give you the strength to weather the hardest part of the journey right now.
I really hope this is the case. I'm so fed up with listening to this sound everywhere i go.
Hi there. I'm a new member to this forum.
My tinnitus which I have had for around 30 years is also unbearable and in both ears. It's a very loud high pitched sound. I have tried various distractions, but nothing alleviates the condition and nights, I can only describe as intolerable. What also makes mine worse, 2 years ago, I had surgery on both ears and grommets inserted. This restored my hearing loss. It has happened again to my right ear and the tinnitus is now much louder on that side. I've had 2 MRI scans and now waiting for the results of the second one to see what they plan to do.
I can only sympathise with anyone who has the dreadful condition that has no cure.
My T is so loud it's driving me crazy. I can't relax. I just want to sit and watch some tv without these constant loud noises.
have you tried hypnotherapy ? Even if it just to lower it maybe ?
hi Utd - i hope you hve found some hope from all these messages. I know it all sounds confusing at times but the advice really comes down to 2 things : sound therapy / cbt and psychology: hope, acceptance, distraction etc
I made a few mistake with sound therapy products and sounds before i found something which suits me. I just use this box and have it on at night at a very low volume below volume of T ( barely audible) on the ocean waves.
amazon.co.uk/Relaxation-The...
(I dont use the Sound Oasis boxes because they have wide range of frequencies and i find they irritate my T).
the Flare Audio Calmer (night) ear pieces can reduce the high freqencies getting through, which is good for use indoors- i found these useful last year. If yr T reacts to noise then use ear plugs outside
keep away from the SSRI anti depressnts ( the most usual ones prescribed) - the GP's dont actually know that these can cause or worsen T .
I agree with I I’m in the same boat as u doesn’t matter what I do it always loud
Dog lover is correct. I was in a bad place 18 months ago…as I was thinking my way through it realised that others need me especially my chiwowa . Hang on I promise you will have good days ….stay Humble and be kind to yourself and others till the cloud lifts. We all care on this forum