Can anyone explain this for me? I have had tinnitus since October, I struggle to cope with it and have found ENT and audiology completely unhelpful, but I have noticed a weird thing, Every morning I wake up and it is loud, I then have a bath and wash my hair whilst in the bath, The sound seems to become less, I then clean my teeth, first with a manual toothbrush and then witn a electric toothbrush, I then use a hairdryer and the tinnitus is then down to a whisper in my left ear normally, I can then go all down with the tinnitus becoming louder at times bust mostly low and increasing slightly late evening, This morning routine began as I really could not be bothered in the mornings due to tiredness and would just do everything while in the bat, bathing, hairwashing and teeth cleaning, has anyone else ever experienced this? Thank you.
Strange Tinnitus : Can anyone explain this for... - Tinnitus UK
Strange Tinnitus
Hello beaverwood ,Yes I’ve noticed that different positions like getting up from laying down , or as you say bathing etc . Does make mine go up and down . Think it must be to do with ear pressure . Mine is at its worst walking around my bungalow . If I go outside it’s much better. However, Tinnitus is very weird , full stop !!!!
Thank you for your reply.
HiMine started or rather I started noticing it around the same time.
I'm similar but I can't see any logical pattern.
It's worse indoors than out, varies between rooms. Doing anything physical I notice it less which i guess is just distraction.
I got some ear protectors as though mine seems to vary in how sensitive it is to noise it helps.
I have strange pressure sensation in ears and head and particularly jaw which tends to irritate me more than the sound at the moment. I also get a strange fluttering sensation in ears now and again especially if lie down with head on side.
Strangely cycling helps, wind noise perhaps,
ENT current view is get used to it, not great but seems common. They have said my heating is good really some slight drop in affected ear so though it itself that doesnt warrant a hearing aid i might try one.
Hope things improve for you, it's not easy for sure.
Regards
Rob G
Thank you for the reply, it is certainly a strange one, To be honest I have really found ENT completely useless and the advice of learn to live with it unhelpful, I need to have hope that there is a reason and it will be cured someday, I believe there is light at the end of the tunnel and by observing the little strange things it will lead to finding that reason. The medical profession is strange in itself though, I had cancer a while back, and when diagnosed the help given was second to none, I was encouraged to stay positive from the beginning and that helped me through some very dark time's. With tinnitus any hope is kicked out of you from day one, there is no cure, no hope but you have to learn to live with it? maybe it is just me, but it is not something I can accept.
Hi beaverwood. I'm sorry you've had cancer and have tinnitus. I hesitate to say this - as I'm not a doctor or a nurse - but some forms of cancer treatment can cause tinnitus. So if you're looking for a reason it might be a good place to start. I 'd also refer you to the book Living With Tinnitus & Hyperacusis. There's hope there . No cure but hope of a brighter future.
Thank you fingers crossed, you never know what is around the corner.
I’m going to disagree with you beaverwood- the medics know they can’t help.. And they mustn’t lie to you and say there is a cure. Cos there isn’t! Anything that can be done is down to the sufferer - us! You’ve got a community here which is sympathetic and knows what you’re going through, and the British tinnitus association website offers lots of hints and tips.
Thank you Rosie, I respect your opinion, but at the same time my experience with them so far has been disappointing to say the least, I believe that it is easy to fall into the no cure mindset without at least trying to find the cause, we are all individuals and will all have different cause's. But bearing in mind so far my examination consisted of a look in both ears, then told there is no infection so its tinnitus and we can't do anything about it.
Hello Happyrosie,We have spoken on many occasions and I have found you’ve cheered me along many times. However , I would like to just make a point , if you don’t mind. I do believe that although there is no cure for tinnitus I do think that the Ent clinic and Audiology dept . could in fact do a lot more to reassure people to help their confidence, instead of just saying . Go away and get used to it, I think this attitude with them is very unreasonable and unhelpful. We all need support and because tinnitus is so awful and some people have it worse than others it’s a time in your life that really needs some “ kindness”. because most of our friends and family don’t understand what’s going on if they’ve not experienced it. So we “ do” rely on these departments, as a last resort. I hope you agree with me . They could even hand out booklets of information and organisations etc . Everyone appreciates a friendly supportive ear.
Hello rabbits (is it Penny really?) I’ve always found your posts to be intuitive, empathetic and helpful. In this instance I felt the poster might be blaming the doctor for saying there’s no cure. My experience very much chimed with beaverwood, getting a shrug of the shoulders from audiologist, gp’s and ENT consultants. I’m aware that I’m very very lucky compared with most of the participants in these forums in that my T came on very gradually in my teens and I thought it was all part of growing up and that everyone had it.
So I’ve never suffered in the same way (though I have had cancer!) though I’ve found that family and friends just do not understand and, yes, that’s hard.
Later in my life, once I realised that I have T and not everybody else does, I read a few newspaper articles, did a bit of research myself and found there was no cure. I’ve only consulted ENT etc etc because of other ear issues and have mentioned T in passing, and been given the shoulder shrug routine so I’m used to it! But, the profession needs to be clear on the fact that there’s no cure currently though research continues.
So, I agree that kindness from the profession would be helpful - it’s meant to be a caring profession after all - but the truth must be told.
To summarise, I agree with you and we’re on the same side!
Thanks for replying . My T has been particularly bad lately and it’s only been this “ site” that’s kept me sane !!!! Yes that’s right I am Penny. 😊
I do fully sympathise with you and I understand your viewpoint. The BTA has a video which you can see on UTube. If you ask them for the link they will give it to you - I’ve not been able to copy it for you. It gives the gp’s viewpoint and is very helpful to see things from their, the gp’s, angle
Thank you Rosie, I have to stay positive and hopeful for my sanity, I really appreciate your replies and support.
Hi beaverwood
Sorry to hear you're struggling with T
If interested, please read my post from about 1 year ago, where I tell how I got rid of it after having it for 40 years, just by 'redefining' what it actually is
All the best
Alps
Thank you, I think.
I guess your experience with ent is far from satisfactory judging by your posts and it’s hard to read for me, the reason I am posting this is because apart from my wife and understanding gp, ent I firmly believe saved my life, on referral they saw me extremely quickly and the support I got was fantastic at the same time explaining “ no cure” but we will make your life worth living,,, and they did just that.
Hi, Thank you for your reply, I am glad you received a positive response from the ENT, To be honest I found them to be completely un- interested and dismissive, I really do not understand how they state there is nothing they can do, no cure or cause can be found without actually investigating first, but then it is the easy way of getting rid of problems from the start, Perhaps to investigate the patient cost's money and the aim is to keep cost's down, I can only go by my own experience, but I see a lot of others getting the same response from the Consultant's and Doctors and wonder if perhaps a more comprehensive examination could prove to be more effective.
Dear beaverwood,
I agree that happens to me pretty much the same, but it is a though all that might fall under "white noise" and that's when I feel better myself. The shower water is beautiful, which would lead me to think that if we all went out and purchased a little waterfall for our bedrooms that noise ; rather pleasure sound, would be of benefit to us as we rest, I think i"ll go out and pick up one and report back.....
Now onto my progress that has been happening, I am wearing the bone conduction headphones and can not tell you how much these are helping me. I highly recommend them, please read the messages in other post where some other BTA family post messages. All I can say is thank goodness my wife needed new shoes, that we actually will be returning today for a refund, but the ear gear is staying on me as it is now my lifeline between sanity and insanity.
Davidus
Thank you very much, none of it makes much sense, it's all contradiction with Ent, Audiology, and GP, the only thing that stays the same is that there is nothing that can be done, wouldn't feel so bad if they were to try, but that isn't in the script apparently, There must be people out there that have solved their tinnitus but just moved on with life.
Yes that would be nice to hear of true success stories. But I will tell you a fact, that if I hadn't been able to have some type of relief I probably wouldn't be typing on this keyboard right now!
Those crazy to me headphones have not cured a single thing, but it has raised an awareness of an option to; like I said it has brought me from insanity to sanity. I hope you will try them out and see how they have helped and can help.
Of course we all want to go back to life where T was not something we all were discussing.
Yes. I have noticed exactly the same thing.
My tinnitus is worse in the morning but like you after I have my hot shower it does settle a bit, I also have migraines daily, My neurologist said it was caused by migraines, but another doctor said it was tendinitis in my jaw causing the problem. I have T 24/7. When the weather changes my head pressure and tinnitus gets worse. I feel stress is the culprit. Tens unit might be helpful on the back of the neck?
Thank you for your reply, it is very interesting as I have it all the time also, I have today seen a neurological scientist as I suffer with chronic migraine and my consultant has said they are too complex for him, his opinion was that the tinnitus is caused by pressure in the head, but there is some very interesting facts with this, please email me as it may help you also, At last I feel a glimmer of hope. Alan
Hi Alan,I have the head pressure also every day and yes I believe some of this could be caused by migraines, heavy metals, neck issues and jaw issues. I also was diagnosed with Thoracic outlet syndrome so all of this combined is reeking havoc on me. Neurofeedback does help and if you are interested in this I can tell you more about it. You can find my web page at ww.brainwavefitness.net
Take care,
Kim
I have been suffering with 24/7 high pitch sound in my right ear for about six years now. I remember when my Dad was alive that he complained about the sounds in his ears as well. My family including myself never took it seriously as we did not understand or have any idea how terrible this condition is . His doctors just kept measuring the pressure in his ears and prescription after prescription of different drops to put in his ears. He has been gone now for about eight years and I realize that it is probably one of the worst conditions to have. Nobody around you takes you seriously and think you are just complaining about nothing. I find that some days are worse than others and when I get away from the city sometimes it will disappear completely. This makes me think that perhaps the EMF factors may be contributing to this . If I were to stand near a power tower that high pitch sound anyone can hear is the same as the sound in my head. Of course dome think I am abit crazy to think this. At night if the sound is really unbearable I turn on a sound machine which has a timer and various sounds from white noise to rainforest to help me go to sleep. Most times before twenty minutes are up I fall asleep. These can be purchased at a drug store for about thirty dollars. It certainly help at night. Hope this might help some. There has to be more help to give us back the sounds of silence.
Thank you very much.
I went to Memphis Tennessee a few years ago and the Tinnitus was loud, Memphis has the largest towers that look like Pine trees. They were all over the place. I think this is what caused it to become loud.
I am sure that a lot of the new tec and 5 g's and cell phone have some effect on all of us. I was doing some research on EMF factor and many researchers firmly believe they have many side effects. When you see kids on their bikes going down the road and texting at the same time it just blows my mind. No wonder many youth of today can not communicate face to face. Carrying cell phone in your pockets all day and other tec devices are certainly not healthy. All the screen time from alternate schooling because of covid is bound to lead to health issues . But, it is hard to say what the primary cause of tinnitus is. Unfortunately we are left behind.
I have a small clipper for ears/nose hair. When I use it on my ears - it causes a vibration and it lessens the tinnitus sound (sometimes to nothing) for a few minutes - but the full sound comes back. I have acute tinnitus and so the sound is as loud as a persons voice - so any decrease is very perceptible.
Thank you for your reply, I am still determined to find the cause and treat it as a competition now, it kinda works a bit 😊
A Tinnitus Sufferer
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